Brief Report: Participation of Black and African-American Families in Autism Research

Autor/inn/en	Shaia, Wendy E.; Nichols, Helen M.; Dababnah, Sarah; Campion, Karen; Garbarino, Nicole
Titel	Brief Report: Participation of Black and African-American Families in Autism Research
Quelle	In: Journal of Autism and Developmental Disorders, 50 (2020) 5, S.1841-1846 (6 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0162-3257
DOI	10.1007/s10803-019-03926-0
Schlagwörter	Autism; Pervasive Developmental Disorders; Family Involvement; African American Family; Participatory Research; Barriers; Inclusion + Suchen Sie Ihr Suchwort? Autismus; Forschungstätigkeit; Inklusion
Abstract	Black and African-American families are underrepresented in research on autism spectrum disorder (ASD) and few studies have explored how to increase their involvement. To address this gap in the literature, this study explored the perspectives of 22 Black families raising children with ASD in order to identify facilitators and barriers to research participation; as well as suggestions to increase their involvement in ASD studies. Facilitators to research involvement included a desire to contribute to ASD research inclusive of Black families; to seek information and support for child and/or caregiver; and, to engage with culturally responsive research team members. Barriers to research involvement included stigma; denial, shame, and/or embarrassment; distrust of the research process; lack of time/interest; and research material inaccessibility or literacy issues. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01