Literaturnachweis - Detailanzeige
| Autor/inn/en | McDonald, Nicole M.; Hyde, Carly; Choi, April Boin; Gulsrud, Amanda C.; Kasari, Connie; Nelson, Charles A., III; Jeste, Shafali S. |
|---|---|
| Titel | Improving Developmental Abilities in Infants with Tuberous Sclerosis Complex: A Pilot Behavioral Intervention Study |
| Quelle | In: Infants and Young Children, 33 (2020) 2, S.108-118 (11 Seiten)
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| Sprache | englisch |
| Dokumenttyp | gedruckt; online; Zeitschriftenaufsatz |
| ISSN | 0896-3746 |
| Schlagwörter | Infants; Child Development; Genetic Disorders; Pervasive Developmental Disorders; Autism; Intellectual Disability; Early Intervention; Skill Development; Interpersonal Competence; Play; Outcomes of Treatment; Parent Attitudes; Fidelity |
| Abstract | Tuberous sclerosis complex (TSC) is a rare genetic syndrome that confers risk for neurodevelopmental disorders, including autism spectrum disorder and intellectual disability. Delays in social communication and early cognitive abilities are observable as early as 9 months of age in children with TSC; however, there have been no studies of early behavioral intervention in TSC. We conducted a pilot study of an evidence-based, parent-mediated behavioral intervention focused on improving early social communication and play skills in 5 children with TSC (aged 1-3 years). Participants showed maintenance and sometimes gains in developmental abilities, relative to peers, following intervention. Parents generally found the intervention to be helpful and were able to administer the intervention with fidelity. Preliminary results demonstrate initial feasibility of an early play-based, parent-mediated intervention and support the need for a large-scale, randomized clinical trial in TSC. (As Provided). |
| Anmerkungen | Lippincott Williams & Wilkins. Available from: Wolters Kluwer. 351 West Camden Street, Baltimore, MD 21201. Tel: 800-638-3030; e-mail: MR-WKCustomerSupport@wolterskluwer.com; Web site: https://journals.lww.com/pages/default.aspx |
| Erfasst von | ERIC (Education Resources Information Center), Washington, DC |
| Update | 2024/1/01 |
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