Physicians' Perceptions on Quality of Life of Persons with Profound Intellectual and Multiple Disabilities: A Qualitative Study

Autor/inn/en	Nieuwenhuijse, Appolonia M.; Willems, Dick L.; Olsman, Erik
Titel	Physicians' Perceptions on Quality of Life of Persons with Profound Intellectual and Multiple Disabilities: A Qualitative Study
Quelle	In: Journal of Intellectual & Developmental Disability, 45 (2020) 2, S.176-183 (8 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1366-8250
DOI	10.3109/13668250.2019.1580117
Schlagwörter	Physicians; Attitudes; Quality of Life; Severe Intellectual Disability; Multiple Disabilities; Decision Making; Emotional Response; Physical Disabilities; Physical Health; Interpersonal Relationship; Foreign Countries; Social Environment; Netherlands + Suchen Sie Ihr Suchwort? Physician; Doctor; Arzt; Attitude; Einstellung; Verhalten; Lebensqualität; Multiple disability; Mehrfachbehinderung; Decision-making; Entscheidungsfindung; Emotionales Verhalten; Physical handicap; Körperbehinderung; Gesundheitszustand; Interpersonal relation; Interpersonal relations; Interpersonelle Beziehung; Zwischenmenschliche Beziehung; Ausland; Soziales Umfeld; Niederlande
Abstract	Background: Quality of Life (QoL) may be a factor in physicians' decisions on treatment of persons with Profound Intellectual and Multiple Disabilities (PIMD). We explored the perception of physicians on the QoL of persons with PIMD. Method: We conducted semi-structured interviews with seven experienced physicians treating persons with PIMD, thematically analysed them and identified clusters of related elements of QoL. Results: Emotional, physical and relational clusters of elements were found. Physicians named mainly emotional elements to describe good QoL, physical elements to describe poor QoL and they emphasised the role of relational context on QoL. In addition, they mentioned a balance between good and poor elements as good QoL. Physical decline, bad prognosis and increasing problems in the relational context influenced QoL in a negative way. Conclusions: The influence of the relational context on both good and poor QoL needs more investigation because of its consequences for ethical decision-making. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01