Literaturnachweis - Detailanzeige
| Autor/inn/en | ten Hoopen, Leontine W.; de Nijs, Pieter F. A.; Duvekot, Jorieke; Greaves-Lord, Kirstin; Hillegers, Manon H. J.; Brouwer, Werner B. F.; Hakkaart-van Roijen, Leona |
|---|---|
| Titel | Children with an Autism Spectrum Disorder and Their Caregivers: Capturing Health-Related and Care-Related Quality of Life |
| Quelle | In: Journal of Autism and Developmental Disorders, 50 (2020) 1, S.263-277 (15 Seiten)
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| Zusatzinformation | ORCID (ten Hoopen, Leontine W.) |
| Sprache | englisch |
| Dokumenttyp | gedruckt; online; Zeitschriftenaufsatz |
| ISSN | 0162-3257 |
| DOI | 10.1007/s10803-019-04249-w |
| Schlagwörter | Quality of Life; Autism; Pervasive Developmental Disorders; Caregivers; Referral; Clinics; Caregiver Attitudes; Anxiety; Depression (Psychology); Health; Pain; Caregiver Child Relationship; Parent Child Relationship; Correlation; Parent Attitudes |
| Abstract | This study investigated health-related QoL (HRQoL) and care-related quality of life (CarerQol) in clinically referred children with an autism spectrum disorder (ASD), and their primary and secondary caregivers. The EuroQol five-dimensional (EQ-5D) and the CarerQol questionnaires were used to respectively measure health-related QoL and care-related QoL. Primary caregivers reported pain/discomfort (42%) and anxiety/depression (40%). In caring, they mostly experienced problems in the relationship with the child (84%), and in combining care with daily activities (51%). Children with ASD had a relevantly lower QoL. Despite negative effects, almost all caregivers (96%) derived fulfillment from caring for their affected children. HRQoL and CarerQol reports of primary caregivers and children were correlated, both providing useful information to ASD measurement and treatment. (As Provided). |
| Anmerkungen | Springer. Available from: Springer Nature. 233 Spring Street, New York, NY 10013. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-348-4505; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/ |
| Erfasst von | ERIC (Education Resources Information Center), Washington, DC |
| Update | 2024/1/01 |
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