Assuming Ability of Youth with Autism: Synthesis of Methods Capturing the First-Person Perspectives of Children and Youth with Disabilities

Autor/inn/en	Tesfaye, Rackeb; Courchesne, Valerie; Yusuf, Afiqah; Savion-Lemieux, Tal; Singh, Ilina; Shikako-Thomas, Keiko; Mirenda, Pat; Waddell, Charlotte; Smith, Isabel M.; Nicholas, David; Szatmari, Peter; Bennett, Terry; Duku, Eric; Georgiades, Stelios; Kerns, Connor; Vaillancourt, Tracy; Zaidman-Zait, Anat; Zwaigenbaum, Lonnie; Elsabbagh, Mayada
Titel	Assuming Ability of Youth with Autism: Synthesis of Methods Capturing the First-Person Perspectives of Children and Youth with Disabilities
Quelle	In: Autism: The International Journal of Research and Practice, 23 (2019) 8, S.1882-1896 (15 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Tesfaye, Rackeb) ORCID (Courchesne, Valerie)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361319831487
Schlagwörter	Autism; Pervasive Developmental Disorders; Youth; Disabilities; Research Methodology; Evaluation Methods; Parents; Barriers; Communication (Thought Transfer) + Suchen Sie Ihr Suchwort? Autismus; Jugend; Jugendlicher; Jugendalter; Handicap; Behinderung; Research method; Forschungsmethode; Eltern; Communication; thought; Kommunikation; Gedanke
Abstract	Most research regarding youth with autism spectrum disorder has not focused on their first-person perspectives providing limited insight into methodologies best suited to eliciting their voices. We conducted a synthesis of methods previously used to obtain the first-person perspectives of youth with various disabilities, which may be applicable to youth with autism spectrum disorder. Two-hundred and eighty-four articles met the inclusion criteria of our scoping review. We identified six distinct primary methods (questionnaires, interviews, group discussion, narratives, diaries, and art) expressed through four communication output modalities (language, sign language and gestures, writing, and images). A group of parents who have children with autism spectrum disorder were then presented with a synthesis of results. This parent consultation was used to build on approaches identified in the literature. Parents identified barriers that may be encountered during participant engagement and provided insights on how best to conduct first-person research with youth with autism spectrum disorder. Based on our findings, we present a novel methodological framework to capture the perspectives of youth with various communication and cognitive abilities, while highlighting family, youth, and expert contributions. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01