Challenging Sleep-Wake Behaviors Reported in Informal, Conversational Interviews of Caregivers of Children with Fetal Alcohol Spectrum Disorder

Autor/inn/en	Spruyt, Karen; Ipsiroglu, Osman; Stockler, Sylvia; Reynolds, James N.
Titel	Challenging Sleep-Wake Behaviors Reported in Informal, Conversational Interviews of Caregivers of Children with Fetal Alcohol Spectrum Disorder
Quelle	In: International Journal of Developmental Disabilities, 64 (2018) 2, S.65-74 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Spruyt, Karen) ORCID (Reynolds, James N.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	2047-3869
DOI	10.1080/20473869.2016.1229395
Schlagwörter	Sleep; Drinking; Pregnancy; Correlation; Fetal Alcohol Syndrome; Alcohol Abuse; Language Usage; Caregiver Attitudes; Foreign Countries; Behavior; Children; Child Behavior; Parent Attitudes; Canada + Suchen Sie Ihr Suchwort? Schlaf; Trinken; Schwangerschaft; Korrelation; Fetal alcohol spectrum disorders; Alkoholembryopathie; Sprachgebrauch; Ausland; Child; Kind; Kinder; Elternverhalten; Kanada
Abstract	Objective: Sleep complaints are clinically expected in children exposed to alcohol during pregnancy. We aim to reveal patterns of association among sleep--wake behaviors that are challenging in the life of children with fetal alcohol spectrum disorders (FASD). Methods: Through text-mining analyses, we numericized the transcripts of 59 caregiver's informal, conversational interviews. That is, the relative frequencies-of-occurrences of words as well as their semantic specificities (italic) were clustered, categorized, and visualized for patterns. Results: A total of 4008 words were indexed where "sleep" took the 91st place of most important words. "Sleep" and "wake" were however not associatively conversed throughout the interviews. Sleep-related words conversed were: "night," "nap," "apnea," "asleep," "awake," "bed," "bedroom," "bedtime," "mattress," "melatonin," "overnight," and "wakeup." Among some FASD-characteristic words describing the challenges were: "huge," "alcohol," "manage," "stop," "adopt," "crazy." The semantic space reflecting these challenges experienced in caring for children with FASD was divided into two axes: child-oriented vs. other-oriented words, and day-related and night-related words. The position of sleep shows that problematic sleep was expressed as a 'family' issue. Clumsy* was interrelated with problematic sleeping and waking. Despite that mostly "night" was associatively conversed, the association of "Routines," "Managing," and "Planning" with "sleep" underscores the challenges faced. Conclusion: When conversing caregivers of children with FASD seldom interrelate 'sleep' but rather 'night' with FASD-characteristics. Increased sleep awareness combined with educational initiatives regarding sleep are advocated. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01