Making the Future Together: Shaping Autism Research through Meaningful Participation

Autor/inn/en	Fletcher-Watson, Sue; Adams, Jon; Brook, Kabie; Charman, Tony; Crane, Laura; Cusack, James; Leekam, Susan; Milton, Damian; Parr, Jeremy R.; Pellicano, Elizabeth
Titel	Making the Future Together: Shaping Autism Research through Meaningful Participation
Quelle	In: Autism: The International Journal of Research and Practice, 23 (2019) 4, S.943-953 (11 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Fletcher-Watson, Sue) ORCID (Crane, Laura)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361318786721
Schlagwörter	Autism; Communities of Practice; Participatory Research; Empathy; Research Methodology; Leadership; Seminars; Foreign Countries; Best Practices; Advocacy; Social Bias; Pervasive Developmental Disorders; Social Attitudes; United Kingdom + Suchen Sie Ihr Suchwort? Autismus; Community; Forschungstätigkeit; Empathie; Research method; Forschungsmethode; Führung; Führungsposition; Seminar; Ausland; Sozialanwaltschaft; Social attidude; Soziale Einstellung; Großbritannien
Abstract	Participatory research methods connect researchers with relevant communities to achieve shared goals. These methods can deliver results that are relevant to people's lives and thus likely to have a positive impact. In the context of a large and growing body of autism research, with continued poor implementation, and some evidence of community dissatisfaction, there is a powerful case for participatory autism research. In order to develop a framework for such collaborative working, a UK seminar series was organised and co-produced by autistic and non-autistic people with academic, practitioner and lived expertise. This article reports on the outcomes from the series, identifying five topics relevant to building a community of practice in participatory research: Respect, Authenticity, Assumptions, Infrastructure and Empathy. Each topic is connected to a specific example from within and beyond research, to inspire new practices in the field. We call for the development of participatory research skills among the autism research community and the facilitation of greater autistic leadership of, and partnership in, research. Such work, if delivered to a high standard, is likely to lead to better translation into practice and improved outcomes for autistic people and those who support them. (As Provided).
Anmerkungen	SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://sagepub.com
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01