Literaturnachweis - Detailanzeige
| Autor/inn/en | Tremblay, Isabelle; Grondin, Steffany; Laberge, Anne-Marie; Cousineau, Dominique; Carmant, Lionel; Rowan, Anita; Janvier, Annie |
|---|---|
| Titel | Diagnostic and Therapeutic Misconception: Parental Expectations and Perspectives Regarding Genetic Testing for Developmental Disorders |
| Quelle | In: Journal of Autism and Developmental Disorders, 49 (2019) 1, S.363-375 (13 Seiten)
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| Zusatzinformation | ORCID (Tremblay, Isabelle) |
| Sprache | englisch |
| Dokumenttyp | gedruckt; online; Zeitschriftenaufsatz |
| ISSN | 0162-3257 |
| DOI | 10.1007/s10803-018-3768-6 |
| Schlagwörter | Parents; Expectation; Parent Attitudes; Children; Genetics; Testing; Etiology; Intervention; Clinical Diagnosis; Misconceptions; Pervasive Developmental Disorders |
| Abstract | Parents' understanding/expectations regarding genetic testing for children with developmental disorders were explored. Within a month of testing, interviews were conducted with 57 parents. Many (74%) could not recall the nature of testing. Parents expected genetic testing to have positive impacts for the child (93%) and the family (98%), mainly to find the etiology and/or an intervention. Many parents (40%) reported not knowing their child's clinical diagnosis. They expected genetic testing would establish the diagnosis. Parents anticipated potential negative impacts of testing for children (78%) and families (87%), mainly finding another illness or not finding potential interventions. Abnormal results explaining the disorder were found in 9% of children. In summary, genetic results for developmental disorders are unlikely to meet parental expectations. (As Provided). |
| Anmerkungen | Springer. Available from: Springer Nature. 233 Spring Street, New York, NY 10013. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-348-4505; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/ |
| Erfasst von | ERIC (Education Resources Information Center), Washington, DC |
| Update | 2020/1/01 |
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