Mobile Technology Use and Skills among Individuals with Fragile X Syndrome: Implications for Healthcare Decision Making

Autor/inn/en	Raspa, M.; Fitzgerald, T.; Furberg, R. D.; Wylie, A.; Moultrie, R.; DeRamus, M.; Wheeler, A. C.; McCormack, L.
Titel	Mobile Technology Use and Skills among Individuals with Fragile X Syndrome: Implications for Healthcare Decision Making
Quelle	In: Journal of Intellectual Disability Research, 62 (2018) 10, S.821-832 (12 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Raspa, M.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0964-2633
DOI	10.1111/jir.12537
Schlagwörter	Telecommunications; Handheld Devices; Intellectual Disability; Parent Attitudes; Age Differences; Gender Differences; Autism; Pervasive Developmental Disorders; Depression (Psychology); Cognitive Ability; Skill Development; Health Services; Decision Making; Children; Information Seeking; Information Sources; Technological Literacy + Suchen Sie Ihr Suchwort? Telekommunikationstechnik; Intellect; Disability; Disabilities; Verstand; Behinderung; Elternverhalten; Age; Difference; Age difference; Altersunterschied; Geschlechterkonflikt; Autismus; Denkfähigkeit; Kompetenzentwicklung; Qualifikationsentwicklung; Health service; Gesundheitsdienst; Gesundheitswesen; Decision-making; Entscheidungsfindung; Child; Kind; Kinder; Informationserschließung; Information source; Informationsquelle; Technisches Wissen
Abstract	Background: Little is known about how individuals with fragile X syndrome (FXS) and their families use technology in daily life and what skills individuals with FXS can perform when using mobile technologies. Methods: Using a mixed-methods design, including an online survey of parents (n = 198) and a skills assessment of individuals with FXS (n = 6), we examined the experiences and abilities of individuals with FXS for engaging with mobile technology. Results: Parents reported that individuals with FXS often used technology in their daily lives, with variations based on age of child, sex, autism status, depression, and overall ability. Parents frequently sought and shared FXS-related information online. Assessment data revealed that individuals with FXS demonstrated proficiency in interacting with technology. Conclusions: Mobile technology is a tool that can be used in FXS to build skills and increase independence rather than simply for recreational purposes. Implications for using mobile technology to enhance healthcare decision making are discussed. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01