"I Love My Sister, but Sometimes I Don't": A Qualitative Study into the Experiences of Siblings of a Child with Profound Intellectual and Multiple Disabilities

Autor/inn/en	Luijkx, Jorien; van der Putten, Annette A. J.; Vlaskamp, Carla
Titel	"I Love My Sister, but Sometimes I Don't": A Qualitative Study into the Experiences of Siblings of a Child with Profound Intellectual and Multiple Disabilities
Quelle	In: Journal of Intellectual & Developmental Disability, 41 (2016) 4, S.279-288 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1469-9532
DOI	10.3109/13668250.2016.1224333
Schlagwörter	Siblings; Severe Intellectual Disability; Multiple Disabilities; Sibling Relationship; Children; Quality of Life; Attitude Measures; Recreational Activities; Psychological Patterns; Attitudes; Social Support Groups; Foreign Countries; Netherlands + Suchen Sie Ihr Suchwort? Sibling; Geschwister; Multiple disability; Mehrfachbehinderung; Sibling relations; Geschwisterbeziehung; Child; Kind; Kinder; Lebensqualität; Freizeitgestaltung; Attitude; Einstellung; Verhalten; Social support; Soziale Unterstützung; Ausland; Niederlande
Abstract	Background: Many previous family quality of life studies have relied on parental information for understanding if and how having a sibling with profound intellectual and multiple disabilities (PIMD) influences the sibling's quality of life. In the current study, children had the opportunity to describe both positive and negative aspects of having a sibling with PIMD. Method: Photo elicitation interviews were conducted with 18 children (6-13 years old) and thematically analysed using the following domains: joint activities, mutual understanding, private time, acceptance, forbearance, trust in wellbeing, exchanging experiences, social support, and dealing with the outside world. Results: Overall, the children described both positive and negative experiences, indicating that having a sibling with PIMD influenced their quality of life in multiple ways. Most mentioned were experiences classified in the joint activities domain. Conclusion: Having a sibling with PIMD influences the life of the interviewed children both positively and negatively. Both the opportunity for shared activities with the sibling with PIMD and moments of private time are important for sibling quality of life. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01