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Autor/inn/enCoons, Kelly D.; Watson, Shelley L.; Schinke, Robert J.; Yantzi, Nicole M.
TitelAdaptation in Families Raising Children with Fetal Alcohol Spectrum Disorder. Part I: What Has Helped
QuelleIn: Journal of Intellectual & Developmental Disability, 41 (2016) 2, S.150-165 (16 Seiten)Infoseite zur Zeitschrift
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Spracheenglisch
Dokumenttypgedruckt; online; Zeitschriftenaufsatz
ISSN1469-9532
DOI10.3109/13668250.2016.1156659
SchlagwörterFetal Alcohol Syndrome; Child Rearing; Family Environment; Adjustment (to Environment); Coping; Foreign Countries; Family Life; Parent Attitudes; Social Support Groups; Advocacy; Friendship; Canada
AbstractBackground: There is limited research investigating the lived experiences of parents raising children with fetal alcohol spectrum disorder (FASD). The aim of this paper is to use qualitative analysis to identify how parents have adapted to the experience of raising their child with FASD. Method: Eighty-four parents and caregivers of children with FASD in Ontario, Canada, participated in in-depth, semistructured interviews employing a basic interpretive approach. Results: Parents of children with FASD report a number of strategies, supports, and transformational outcomes. Using interpretative phenomenological analysis, 5 themes were identified: understanding FASD and advocating on their child's behalf, day-to-day adaptation, transformational outcomes, as well as the importance of informal and formal supports. Conclusions: Understanding what families do in order to facilitate adaptation is important when assisting families who may not be adapting as successfully. Continued research looking at the family experience of raising a child with a developmental disability, such as FASD, is necessary. (As Provided).
AnmerkungenTaylor & Francis. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Erfasst vonERIC (Education Resources Information Center), Washington, DC
Update2020/1/01
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