Co-Research with Adults with Intellectual Disability: A Systematic Review

Autor/inn/en	Di Lorito, Claudio; Bosco, Alessandro; Birt, Linda; Hassiotis, Angela
Titel	Co-Research with Adults with Intellectual Disability: A Systematic Review
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 31 (2018) 5, S.669-686 (18 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Di Lorito, Claudio)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12435
Schlagwörter	Participatory Research; Inclusion; Adults; Intellectual Disability; Research Problems; Educational Benefits; Best Practices; Patients; Community Involvement + Suchen Sie Ihr Suchwort? Forschungstätigkeit; Inklusion; Intellect; Disability; Disabilities; Verstand; Behinderung; Forschungskritik; Bildungsertrag; Patient
Abstract	Background: Co-research with people with intellectual disability is a distinct form of patient and public involvement (PPI). This systematic review summarize published studies and protocols to report on the process of co-research in social and healthcare research. Method: Relevant studies were identified using electronic searches on ASSIA, PsycInfo and MedLine. Study quality was assessed, and information relevant to the process of working with co-researchers was extracted and thematically analysed. Results: Thirteen studies were retrieved. Data are reported under three themes: (i) challenges of co-research; (ii) facilitators of co-research; (iii) benefits of co-research. Best practice is presented as a model of co-research. Content analysis on 12 research protocols identified four themes related to PPI. Conclusions: All stakeholders involved in co-research with people with intellectual disability can benefit, providing there is adequate infrastructure to accommodate and empower the co-researchers. Many current intellectual disability research projects still lack systematic involvement of PPI members. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01