An Exploration of the Participation of People with Intellectual Disabilities in Research--A Structured Interview Survey

Autor/inn/en	Frankena, Tessa Kim; Naaldenberg, Jenneken; Bekkema, Nienke; Schrojenstein Lantman-de Valk, Henny J. M.; Cardol, Mieke; Leusink, Geraline
Titel	An Exploration of the Participation of People with Intellectual Disabilities in Research--A Structured Interview Survey
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 31 (2018) 5, S.942-947 (6 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Frankena, Tessa Kim)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12453
Schlagwörter	Participatory Research; Inclusion; Intellectual Disability; Participation; Motivation; Incidence + Suchen Sie Ihr Suchwort? Forschungstätigkeit; Inklusion; Intellect; Disability; Disabilities; Verstand; Behinderung; Teilnahme; psychologische; Motivation (psychologisch); Vorkommen
Abstract	Background: Even though participation of people with intellectual disabilities in research is increasingly common, there is little insight into how many people with intellectual disabilities participate, their motivations to participate and their interests regarding study results. Method: Five questions were added to the Panel Living Together (PLT) survey among 508 people with intellectual disabilities. The questions aimed to gain insight into the (i) frequency of participation; (ii) methods used to participate; (iii) motivations to participate; and (iv) interests regarding study results. Results: Although 73.5% (n = 347) of the respondents enjoyed their participation and 71.6% (n = 312) found it important to participate, only 11.8% (n = 60) participated in research other than PLT. Of the respondents, 61% (n = 261) indicated they wanted to be informed about study results, 29.1% (n = 148) of this group stated they wanted to compare, learn and share information. Conclusions: Future research should focus on how motivations of people with intellectual disabilities to participate in inclusive research, such as "empowerment," can be supported to facilitate their involvement in research. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01