Biographical Disruption: Experiences of Mothers of Adults Assessed for Autism Spectrum Disorder

Autor/inn/en	Raymond-Barker, Phillipa; Griffith, Gemma Maria; Hastings, Richard P.
Titel	Biographical Disruption: Experiences of Mothers of Adults Assessed for Autism Spectrum Disorder
Quelle	In: Journal of Intellectual & Developmental Disability, 43 (2018) 1, S.83-92 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1469-9532
DOI	10.3109/13668250.2016.1262011
Schlagwörter	Autism; Pervasive Developmental Disorders; Mothers; Adults; Disability Identification; Parent Attitudes; Foreign Countries; Interviews; Experience; Family Environment; United Kingdom + Suchen Sie Ihr Suchwort? Autismus; Mother; Mutter; Elternverhalten; Ausland; Interviewing; Interviewtechnik; Erfahrung; Familienmilieu; Großbritannien
Abstract	Background: Little is known about the experiences of parents whose sons or daughters are diagnosed with autism spectrum disorder (ASD) during adulthood. Method: In this exploratory study, 6 mothers of adults recently diagnosed with ASD were interviewed about the ASD assessment process. Thematic analysis was used to analyse the interviews. Results: Two superordinate themes are described: (1) biographical continuity, and (2) biographical disruption. Mothers did not experience significant disruption around the ASD assessment itself, as they had sought an explanation for their son's/daughter's behaviour since childhood. Therefore, being referred for an ASD assessment was simply another assessment for their son or daughter and was thus a "biographical continuity." Mothers experienced "biographical disruption" once an ASD diagnosis was received, as they realised that an ASD diagnosis did not result in any additional support, and found this greatly frustrating. Conclusions: There is an unmet need for postdiagnostic support among adults diagnosed with ASD, and for their parents. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01