"What's Going to Happen When We're Gone?" Family Caregiving Capacity for Older People with an Intellectual Disability in Ireland

Autor/inn/en	Brennan, Damien; Murphy, Rebecca; McCallion, Philip; McCarron, Mary
Titel	"What's Going to Happen When We're Gone?" Family Caregiving Capacity for Older People with an Intellectual Disability in Ireland
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 31 (2018) 2, S.226-235 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Brennan, Damien)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12379
Schlagwörter	Foreign Countries; Intellectual Disability; Caregivers; Older Adults; Family Relationship; Qualitative Research; Focus Groups; Semi Structured Interviews; Longitudinal Studies; Demography; Social Support Groups; Social Services; Home Programs; Health Services; Long Range Planning; Ireland + Suchen Sie Ihr Suchwort? Ausland; Intellect; Disability; Disabilities; Verstand; Behinderung; Caregiver; Carer; Betreuungsperson; Pfleger; Älterer Erwachsener; Qualitative Forschung; Longitudinal study; Longitudinal method; Longitudinal methods; Längsschnittuntersuchung; Demografie; Social support; Soziale Unterstützung; Social service; Soziale Dienstleistung; Soziale Dienste; Health service; Gesundheitsdienst; Gesundheitswesen; Langfristige Planung; Irland
Abstract	Background: Changing family sociodemographic factors, increased life expectancy for people with an intellectual disability, deinstitutionalization and policy prioritization of the family as the principal care provider, presents new challenges to care sustainability. Method: A qualitative study design was employed, entailing focus groups and semistructured interviews, with purposive sampling via the parent study population of the Intellectual Disability Supplement to The Irish Longitudinal Database on Ageing. Results: The traditional sociodemographic facilitators of family caregiving are in rapid decline. Families perceived limited support from services and limited future care options. Few future care plans have been formulated. A strong possibility exists of placement of older family members with an intellectual disability in out-of-family home care. Conclusion: To anticipate and provide for quality care supports, there is a need to establish proactive initiatives, for both people with an intellectual disability and their families, to facilitate the early formation of long-term care plans. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01