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| Autor/inn/en | McGinley, Jacqueline; Waldrop, Deborah P.; Clemency, Brian |
|---|---|
| Titel | Emergency Medical Services Providers' Perspective of End-of-Life Decision Making for People with Intellectual Disabilities |
| Quelle | In: Journal of Applied Research in Intellectual Disabilities, 30 (2017) 6, S.1057-1064 (8 Seiten)Infoseite zur Zeitschrift
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| Zusatzinformation | ORCID (McGinley, Jacqueline) |
| Sprache | englisch |
| Dokumenttyp | gedruckt; online; Zeitschriftenaufsatz |
| ISSN | 1360-2322 |
| DOI | 10.1111/jar.12363 |
| Schlagwörter | Emergency Programs; Medical Services; Allied Health Personnel; Death; Decision Making; Intellectual Disability; Mixed Methods Research; Data Analysis; Discourse Analysis; Context Effect; Interviews; Surveys |
| Abstract | Background: Emergency medical services (EMS) providers are often called to rapidly determine and act upon patients' wishes for end-of-life care. People with intellectual disabilities are living increasingly longer with complex conditions leading to international calls for person-centred advance care planning. Yet, best estimates suggest that very few people with intellectual disabilities document their wishes. Methods: This exploratory-descriptive study incorporated mixed methods to analyse data collected consecutively (surveys, n = 239; interviews, n = 48) with EMS providers from five agencies. Data were subjected to a sequential quantitative-qualitative analysis applying a critical discourse analysis framework. Results: Findings indicate that 62.7% had treated a person with intellectual disability who had medical orders directing end-of-life care. Three themes (provider familiarity, organizational processes, sociocultural context) offer insights about how medical orders inform EMS providers during calls involving people with intellectual disabilities. Conclusion: Multiple contexts influence how wishes are documented and care provided to people with intellectual disabilities near life's end. (As Provided). |
| Anmerkungen | Wiley-Blackwell. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8598; Fax: 781-388-8232; e-mail: cs-journals@wiley.com; Web site: http://www.wiley.com/WileyCDA |
| Erfasst von | ERIC (Education Resources Information Center), Washington, DC |
| Update | 2020/1/01 |
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