Perceptions and Discourses Relating to Genetic Testing: Interviews with People with Down Syndrome

Autor/inn/en	Barter, Barbara; Hastings, Richard Patrick; Williams, Rebecca; Huws, Jaci C.
Titel	Perceptions and Discourses Relating to Genetic Testing: Interviews with People with Down Syndrome
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 30 (2017) 2, S.395-406 (12 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12256
Schlagwörter	Down Syndrome; Screening Tests; Interviews; Phenomenology; Value Judgment; Social Influences; Social Attitudes; Intellectual Disability; Genetic Disorders; Attitude Measures; Discourse Analysis + Suchen Sie Ihr Suchwort? 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Screening-Verfahren; Interviewing; Interviewtechnik; Phenomenological psychology; Phänomenologie; Psychologie; Werturteil; Sozialer Einfluss; Social attidude; Soziale Einstellung; Intellect; Disability; Disabilities; Verstand; Behinderung; Diskursanalyse
Abstract	Background: The perceptions of individuals with Down syndrome are conspicuously absent in discussions about the use of prenatal testing. Method: Eight individuals with Down syndrome were interviewed about their views and experience of the topic of prenatal testing. Results: Interpretative phenomenological analysis revealed two major themes with subthemes: (1) a devalued condition and a valued life and (2) a question of "want"? Foucauldian discourse analysis highlighted two main discursive practices: (i) social deviance and (ii) tragedy and catastrophe of the birth of a baby with Down syndrome. Conclusions: The findings suggest that individuals with intellectual disabilities can make a valuable contribution to discussions surrounding the use of prenatal testing. Implications for clinical practice include the use of information about Down syndrome given to prospective parents, and the possible psychological impact of prenatal testing practices on individuals with Down syndrome. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01