Stroke Investigative Research and Education Network: Community Engagement and Outreach within Phenomics Core

Autor/inn/en	Jenkins, Carolyn; Arulogun, Oyedunni Sola; Singh, Arti; Mande, Aliyu T.; Ajayi, Eric; Benedict, Calys Tagoe; Ovbiagele, Bruce; Lackland, Daniel T.; Sarfo, Fred Stephen; Akinyemi, Rufus; Akpalu, Albert; Obiako, Reginald; Melikam, Enzinne Sylvia; Laryea, Ruth; Shidali, Vincent; Sagoe, Kwamena; Ibinaiye, Philip; Fakunle, Adekunie Gregory; Owolabi, Lukman F.; Owolabi, Mayowa O.
Titel	Stroke Investigative Research and Education Network: Community Engagement and Outreach within Phenomics Core
Quelle	In: Health Education & Behavior, 43 (2016) 1, S.82 (11 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1090-1981
DOI	10.1177/1090198116634082
Schlagwörter	Foreign Countries; Neurological Impairments; Medical Research; Health Education; Community Involvement; Outreach Programs; Risk; Diseases; Patients; Caregivers; Leaders; Advisory Committees; Focus Groups; Surveys; Databases; Qualitative Research; Program Evaluation; Research Projects; Success; Africa; Ghana; Nigeria; United States + Suchen Sie Ihr Suchwort? Ausland; Neurodegenerative Erkrankung; Gesundheitsaufklärung; Gesundheitsbildung; Gesundheitserziehung; Jobcoaching; Risiko; Disease; Krankheit; Patient; Caregiver; Carer; Betreuungsperson; Pfleger; Fachleiter; Beratungsstelle; Survey; Umfrage; Befragung; Datenbank; Qualitative Forschung; Programme evaluation; Programmevaluation; Forschungsvorhaben; Erfolg; Afrika; USA
Abstract	Stroke is the leading cause of neurological hospital admissions in sub-Saharan Africa (SSA) and the second leading cause of death globally. The Stroke Investigative Research and Education Network [SIREN] seeks to comprehensively characterize the genomic, sociocultural, economic, and behavioral risk factors for stroke and to build effective teams for research to address and decrease the burden of stroke and other noncommunicable diseases in SSA. One of the first steps to address this goal is to effectively engage the communities that suffer the high burden of disease. The purpose of this article is to describe plans to elucidate information about knowledge, attitudes, beliefs, and practices about stroke and genomics from patients, caregivers, and local leaders, to recruit participation in research activities and dissemination of ongoing results, as well as to facilitate research uptake and impact within the broader communities of scientists, health professionals, policy makers, and others. We describe the (a) study sites and their communities; (b) plans for community advisory boards, focus groups, and surveys; (c) methods for data management in REDCap database; (d) analyses of qualitative data; (e) evaluation of community and public engagement across multiple sites and research teams in SSA and the United States; (f) use of RE-AIM for presentation of evaluation data; and (g) community indicators of success. This is the first of its kind public outreach engagement initiative to evaluate stroke and genomics in SSA, and has implications as a model for assessment in other high-stroke risk populations. [This article was also written by the SIREN Team.] (As Provided).
Anmerkungen	SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://sagepub.com
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01