Stability and Change in Sustainability of Daily Routines and Social Networks in Families of Children with Profound Intellectual and Multiple Disabilities

Autor/inn/en	Wilder, Jenny; Granlund, Mats
Titel	Stability and Change in Sustainability of Daily Routines and Social Networks in Families of Children with Profound Intellectual and Multiple Disabilities
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 28 (2015) 2, S.133-144 (12 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12111
Schlagwörter	Children; Severe Mental Retardation; Severe Disabilities; Multiple Disabilities; Qualitative Research; Change; Sustainability; Social Networks; Family (Sociological Unit); Interviews; Content Analysis; Foreign Countries; Sweden + Suchen Sie Ihr Suchwort? Child; Kind; Kinder; Severe disability; Schwerbehinderung; Multiple disability; Mehrfachbehinderung; Qualitative Forschung; Wandel; Nachhaltigkeit; Social network; Soziales Netzwerk; Familie; Interviewing; Interviewtechnik; Inhaltsanalyse; Ausland; Schweden
Abstract	Background: Children with profound intellectual and multiple disabilities (PIMD) demand intense family accommodations from birth and onwards. This study used an exploratory and qualitative study design to investigate stability and change in sustainability of daily routines and social networks of Swedish families of children with PIMD. Materials and Methods: Eight families participated over two years in eco-cultural family interviews and social networks interviews collected at home visits. Data were analyzed descriptively and by manifest contents analysis. Results: Results showed variations in sustainability of daily routines over time across families. The sustainability was linked to fathers' involvement, couples' connectedness and emotional support. Stability and change of social networks were characterized by low overlap between the child and family networks, the children's communicative dependency and low density of able communication partners. Conclusions: The results indicate that patterns of stability and change were linked both to family resources and child characteristics. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01