Adaptation to the Birth of a Child with a Congenital Anomaly: A Prospective Longitudinal Study of Maternal Well-Being and Psychological Distress

Autor/inn/en	Nes, Ragnhild B.; Røysamb, Espen; Hauge, Lars J.; Kornstad, Tom; Landolt, Markus A.; Irgens, Lorentz M.; Eskedal, Leif; Kristensen, Petter; Vollrath, Margarete E.
Titel	Adaptation to the Birth of a Child with a Congenital Anomaly: A Prospective Longitudinal Study of Maternal Well-Being and Psychological Distress
Quelle	In: Developmental Psychology, 50 (2014) 6, S.1827-1839 (13 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0012-1649
DOI	10.1037/a0035996
Schlagwörter	Life Satisfaction; Mothers; Psychological Patterns; Stress Variables; Congenital Impairments; Longitudinal Studies; Well Being; Adjustment (to Environment); Coping; Foreign Countries; Cohort Analysis; Infants; Toddlers; Down Syndrome; Physical Disabilities; Comparative Analysis; Check Lists; Structural Equation Models; Statistical Analysis; Correlation; Norway; Hopkins Symptom Checklist + Suchen Sie Ihr Suchwort? Lebensvollendung; Mother; Mutter; Longitudinal study; Longitudinal method; Longitudinal methods; Längsschnittuntersuchung; Well-being; Wellness; Wohlbefinden; Bewältigung; Ausland; Kohortenanalyse; Infant; Toddler; Toddlers; Kleinkind; Infants; 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Physical handicap; Körperbehinderung; Checkliste; Statistische Analyse; Korrelation; Norwegen
Abstract	This study explores the stability and change in maternal life satisfaction and psychological distress following the birth of a child with a congenital anomaly using 5 assessments from the Norwegian Mother and Child Cohort Study collected from Pregnancy Week 17 to 36 months postpartum. Participating mothers were divided into those having infants with (a) Down syndrome (DS; n = 114), (b) cleft lip/palate (CLP; n = 179), and (c) no disability (ND; n = 99,122). Responses on the Satisfaction With Life Scale and a short version of the Hopkins Symptom Checklist were analyzed using structural equation modeling, including latent growth curves. Satisfaction and distress levels were highly diverse in the sample, but fairly stable over time (retest correlations: 0.47-0.68). However, the birth of a child with DS was associated with a rapid decrease in maternal life satisfaction and a corresponding increase in psychological distress observed between pregnancy and 6 months postpartum. The unique effects from DS on changes in satisfaction (Cohen's d = -0.66) and distress (Cohen's d = 0.60) remained stable. Higher distress and lower life satisfaction at later assessments appeared to reflect a persistent burden that was already experienced 6 months after birth. CLP had a temporary impact (Cohen's d = 0.29) on maternal distress at 6 months. However, the overall trajectories did not differ between CLP and ND mothers. In sum, the birth of a child with DS influences maternal psychological distress and life satisfaction throughout the toddler period, whereas a curable condition like CLP has only a minor temporary effect on maternal psychological distress. (As Provided).
Anmerkungen	American Psychological Association. Journals Department, 750 First Street NE, Washington, DC 20002. Tel: 800-374-2721; Tel: 202-336-5510; Fax: 202-336-5502; e-mail: order@apa.org; Web site: http://www.apa.org
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01