Family Well-Being in a Participant-directed Autism Waiver Program: The Role of Relational Coordination

Autor/inn/en	Warfield, M. E.; Chiri, G.; Leutz, W. N.; Timberlake, M.
Titel	Family Well-Being in a Participant-directed Autism Waiver Program: The Role of Relational Coordination
Quelle	In: Journal of Intellectual Disability Research, 58 (2014) 12, S.1091-1104 (14 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0964-2633
DOI	10.1111/jir.12102
Schlagwörter	Autism; State Programs; Delivery Systems; Cooperation; Caregivers; Family Environment; Well Being; Surveys; Program Effectiveness; Stress Variables; Family Programs; Attitude Measures; Behavior Problems; Health; Parent Attitudes; Children; Massachusetts + Suchen Sie Ihr Suchwort? Autismus; Regierungsprogramm; Auslieferung; Co-operation; Kooperation; Caregiver; Carer; Betreuungsperson; Pfleger; Familienmilieu; Well-being; Wellness; Wohlbefinden; Survey; Umfrage; Befragung; Family program; Familienprogramm; Gesundheit; Elternverhalten; Child; Kind; Kinder; Master-Studiengang
Abstract	Background: Massachusetts is one of a very limited number of states exclusively employing participant-direction to deliver autism waiver services to children. A crucial element of this waiver program is the work conducted by the state's Department of Developmental Services (DDS) staff and state-approved providers with waiver families to facilitate the implementation of the participant-direction model. Our study investigates the effect of the collaboration between state providers and family caregivers on family well-being. Methods: We conducted a survey of 74 families who have been utilising waiver services for at least 6 months. Participants were asked to rate the coordination with providers as well as to report on parenting stress and impact of waiver services on family functioning. Data from in-home child and family assessments conducted by the state were also abstracted from program records. Results: After controlling for a host of variables hypothesised to affect the outcomes of interest, we found that the family's view of how well they coordinated with formal providers is significantly associated all of the outcomes. Families who reported greater coordination with state providers experienced lower parenting stress and reported a more positive impact on family functioning. Child externalising behavioural problems and caregiver's health rating also contributed to parenting stress and family functioning. Conclusions: Our findings highlight the importance of establishing a collaborative partnership with waiver families in promoting family well-being. These results suggest that training and/or resources that foster team building and communication can positively impact family functioning among families with young children with autism. (As Provided).
Anmerkungen	Wiley-Blackwell. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8598; Fax: 781-388-8232; e-mail: cs-journals@wiley.com; Web site: http://www.wiley.com/WileyCDA
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10