'Do It Yourself' in the Parent-Professional Partnership for the Assessment and Diagnosis of Children with Autism Spectrum Conditions in Hong Kong: A Qualitative Study

Autor/inn/en	Ho, Hilda S. W.; Yi, Huso; Griffiths, Sian; Chan, Dorothy F. Y.; Murray, Stuart
Titel	'Do It Yourself' in the Parent-Professional Partnership for the Assessment and Diagnosis of Children with Autism Spectrum Conditions in Hong Kong: A Qualitative Study
Quelle	In: Autism: The International Journal of Research and Practice, 18 (2014) 7, S.832-844 (13 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361313508230
Schlagwörter	Autism; Clinical Diagnosis; Disability Identification; Qualitative Research; Children; Pervasive Developmental Disorders; Interaction; Parents; Allied Health Personnel; Foreign Countries; Teamwork; Barriers; Semi Structured Interviews; Screening Tests; Diagnostic Tests; Parent Attitudes; Physicians; Hong Kong + Suchen Sie Ihr Suchwort? Autismus; Qualitative Forschung; Child; Kind; Kinder; Interaktion; Eltern; Ausland; Screening-Verfahren; Diagnostic test; Diagnostischer Test; Elternverhalten; Physician; Doctor; Arzt; Hongkong
Abstract	Timely and appropriate care for children with autism spectrum conditions is affected by the interaction between healthcare professionals and parents. Despite the importance of the parent-professional partnership, there is a dearth of cultural-specific data on parent-professional partnership in the Chinese context. We conducted 10 in-depth life-history interviews with parents of children with autism spectrum conditions in Hong Kong who were diagnosed during preschool years. Using an interpretative phenomenological analytic method, five themes were constructed to represent the context of parent-professional partnership in Hong Kong along the pathway of seeking a diagnosis: (a) access to the assessment and diagnosis of autism spectrum conditions, (b) multiple procedures of assessment, (c) consultation prior to diagnosis and assessment, (d) communication of diagnosis and assessment result and (e) post-assessment isolation. Parental narratives highlight the important domains of parent-professional partnership and reflect the complexity of diagnosis and the lack of a cohesive system. For many parents, the assessment procedure was marred by a series of obstacles, which were further exacerbated by a poorly developed parent-professional partnership. Suggestions for parent-professional partnership development include establishing an evidence-based best practice guideline for Hong Kong, creating pre-assessment information workshops for parents to attend and equipping professionals with knowledge about autism spectrum conditions and enhanced communication skills. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10