"In the Driver's Seat": Parent Perceptions of Choice in a Participant-Directed Medicaid Waiver Program for Young Children with Autism

Autor/inn/en	Timberlake, Maria T.; Leutz, Walter N.; Warfield, Marji Erickson; Chiri, Giuseppina
Titel	"In the Driver's Seat": Parent Perceptions of Choice in a Participant-Directed Medicaid Waiver Program for Young Children with Autism
Quelle	In: Journal of Autism and Developmental Disorders, 44 (2014) 4, S.903-914 (12 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0162-3257
DOI	10.1007/s10803-013-1942-4
Schlagwörter	Health Insurance; Young Children; Autism; Parent Attitudes; Grandparents; Interviews; Preferences; Home Health Aides; Money Management; Financial Support; Family Environment; Health Services; Interpersonal Competence; Personality Traits; Self Efficacy + Suchen Sie Ihr Suchwort? Krankenversicherung; Frühe Kindheit; Autismus; Elternverhalten; Großeltern; Interviewing; Interviewtechnik; Hauswirtschaftstechnischer Helfer; Finanzielle Förderung; Familienmilieu; Health service; Gesundheitsdienst; Gesundheitswesen; Interpersonale Kompetenz; Individual characteristics; Personality characteristic; Persönlichkeitsmerkmal; Self-efficacy; Selbstwirksamkeit
Abstract	This study investigated families' experience of choice within a participant-directed Medicaid waiver program for young children with autism. Fourteen parents or grandparents participated in in-depth interviews about their experience of choosing personnel, directing in-home services, and managing the $25,000 annual allocation. Key findings included families' preference to hire providers with whom they have a prior relationship, parent empowerment and differences of opinion about parents as teachers. Professionals implementing participant directed service models could benefit from understanding the strong value parents' placed on the personalities and interpersonal skills of providers. Parents' descriptions of directing rather than merely accepting autism services revealed increased confidence in their ability to choose and manage the multiple components of their children's HCBS autism waiver program. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10