Priorities for Autism Spectrum Disorder Risk Communication and Ethics

Autor/inn/en	Yudell, Michael; Tabor, Holly K.; Dawson, Geraldine; Rossi, John; Newschaffer, Craig
Titel	Priorities for Autism Spectrum Disorder Risk Communication and Ethics
Quelle	In: Autism: The International Journal of Research and Practice, 17 (2013) 6, S.701-722 (22 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361312453511
Schlagwörter	Autism; Pervasive Developmental Disorders; At Risk Persons; Public Health; Communication Strategies; Ethics; Allied Health Personnel; Mass Media Role; Researchers; Information Dissemination; Research Methodology; Access to Information; Research Utilization; Stakeholders + Suchen Sie Ihr Suchwort? Autismus; Risikogruppe; Gesundheitswesen; Kommunikationsstrategie; Ethik; Researcher; Forscher; Informationsverbreitung; Research method; Forschungsmethode; Forschungsumsetzung
Abstract	Autism spectrum disorders are an issue of increasing public health significance. The incidence of autism spectrum disorders has been increasing in recent years, and they are associated with significant personal and financial impacts for affected persons and their families. In recent years, a large number of scientific studies have been undertaken, which investigate genetic and environmental risk factors for autism, with more studies underway. At present, much remains unknown regarding autism spectrum disorder risk factors, but the emerging picture of causation is in many cases complex, with multiple genes and gene-environment interactions being at play. The complexity and uncertainty surrounding autism spectrum disorder risk factors raise a number of questions regarding the ethical considerations that should be taken into account when undertaking autism spectrum disorder risk communication. At present, however, little has been written regarding autism spectrum disorder risk communication and ethics. This article summarizes the findings of a recent conference investigating ethical considerations and policy recommendations in autism spectrum disorder risk communication, which to the authors' knowledge is the first of its kind. Here, the authors discuss a number of issues, including uncertainty; comprehension; inadvertent harm; justice; and the appropriate roles of clinicians, scientists, and the media in autism spectrum disorder risk communication. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10