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Autor/inTodd, Stuart
Titel"Being There": The Experiences of Staff in Dealing with Matters of Dying and Death in Services for People with Intellectual Disabilities
QuelleIn: Journal of Applied Research in Intellectual Disabilities, 26 (2013) 3, S.215-230 (16 Seiten)Infoseite zur Zeitschrift
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Spracheenglisch
Dokumenttypgedruckt; online; Zeitschriftenaufsatz
ISSN1360-2322
DOI10.1111/jar.12024
SchlagwörterMental Retardation; Death; Caregivers; Coping; Interviews; Foreign Countries; Group Homes; Emotional Response; Adjustment (to Environment); Semi Structured Interviews; Hospices (Terminal Care); Family Involvement; Hospitals; Caregiver Role; Qualitative Research; United Kingdom (England); United Kingdom (Wales)
AbstractBackground: Research on staffed housing for people with intellectual disability has identified the challenges in achieving positive quality of life outcomes. However, a less well considered dimension of such services is that they are places of living and dying. This paper looks at the experiences of staff in dealing with issues of death and dying. Method: In depth qualitative interviews were held with 22 staff in 5 different providers and who had experienced, in total, 27 deaths of people with intellectual disability. Results: The data highlight that staff felt providing a good quality of care at the end of life was an important but unrecognised dimension of their work. This work could be broken down into several different phases, dying, death and beyond death. Bad deaths were felt to be those deaths which prevented staff from "being there" with individuals over those phases. (As Provided).
AnmerkungenWiley-Blackwell. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8598; Fax: 781-388-8232; e-mail: cs-journals@wiley.com; Web site: http://www.wiley.com/WileyCDA/
Erfasst vonERIC (Education Resources Information Center), Washington, DC
Update2017/4/10
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