A Phenomenological Study of the Lived Experiences of Parents of Young Children with Autism Receiving Special Education Services

Autor/in	Barrow, Donna Marie
Titel	A Phenomenological Study of the Lived Experiences of Parents of Young Children with Autism Receiving Special Education Services
Quelle	(2017), (337 Seiten) PDF als Volltext Verfügbarkeit Ed.D. Dissertation, Portland State University
Sprache	englisch
Dokumenttyp	gedruckt; online; Monographie
ISBN	978-0-3555-2483-3
Schlagwörter	Hochschulschrift; Dissertation; Phenomenology; Interviews; Parent Attitudes; Autism; Special Education; Incidence; Clinical Diagnosis; Screening Tests; Early Intervention; Infants; Toddlers; Parent Child Relationship; Futures (of Society); Family Relationship; Resilience (Psychology); Barriers; Psychological Patterns; Services + Suchen Sie Ihr Suchwort? Thesis; Dissertations; Academic thesis; Phenomenological psychology; Phänomenologie; Psychologie; Interviewing; Interviewtechnik; Elternverhalten; Autismus; Special needs education; Sonderpädagogik; Sonderschulwesen; Vorkommen; Screening-Verfahren; Infant; Toddler; Toddlers; Kleinkind; Infants; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Future; Society; Zukunft; Dienstleistung
Abstract	Over the past two decades reported rates of autism have steadily risen. The current incidence is 1 in 68 children. While autism can be reliably diagnosed at 18 months in most children with the condition, specialized autism treatment rarely begins before a child's third or fourth birthday. As screening and diagnosis procedures improve so does the need for effective early interventions for autism. Researchers and professionals have expressed a growing concern over the need for effective early interventions for infants and toddlers with autism. At the same time, there is a dearth of qualitative research exploring the needs and experiences of parents with a very young child with autism. Employing a phenomenological framework, the purpose of this study was to investigate the lived experiences of parents of a young child with autism receiving early special education services. Unstructured interviews and photo elicitation were used to generate rich, detailed descriptions of the phenomenon. Data analysis from photographic images and narrative dialogues illuminated six essential themes across participants: (a) parents as pioneers: forging the way for future families; (b) making the journey as a family; (c) navigating uncharted service systems; (d) overcoming challenges and obstacles; (e) resilience, ingenuity and hope; and (f) reflecting on the first three years and looking forward. Participants expressed that they felt this study gave them a "voice" in the research literature. This study is one of the first to investigate the lived experiences of parents as they seek and secure autism services for their child under five with autism. [The dissertation citations contained here are published with the permission of ProQuest LLC. Further reproduction is prohibited without permission. Copies of dissertations may be obtained by Telephone (800) 1-800-521-0600. Web page: http://www.proquest.com/en-US/products/dissertations/individuals.shtml.] (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01