Literaturnachweis - Detailanzeige
Autor/inn/en | Paula, Cristiane Silvestre; Cukier, Sebastián; Cunha, Graccielle Rodrigues; Irarrázaval, Matías; Montiel-Nava, Cecilia; Garcia, Ricardo; Rosoli, Analia; Valdez, Daniel; Bordini, Daniela; Shih, Andy; Garrido, Gabriela; Rattazzi, Alexia |
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Titel | Challenges, Priorities, Barriers to Care, and Stigma in Families of People with Autism: Similarities and Differences among Six Latin American Countries |
Quelle | In: Autism: The International Journal of Research and Practice, 24 (2020) 8, S.2228-2242 (15 Seiten)
PDF als Volltext |
Zusatzinformation | ORCID (Paula, Cristiane Silvestre) |
Sprache | englisch |
Dokumenttyp | gedruckt; online; Zeitschriftenaufsatz |
ISSN | 1362-3613 |
DOI | 10.1177/1362361320940073 |
Schlagwörter | Barriers; Social Bias; Autism; Pervasive Developmental Disorders; Networks; Foreign Countries; Health Services; Children; Educational Improvement; Financial Problems; Working Hours; Parent Child Relationship; Parent Attitudes; Surveys; Cross Cultural Studies; Access to Health Care; Costs; Brazil; Argentina; Uruguay; Chile; Venezuela; Dominican Republic Autismus; Ausland; Health service; Gesundheitsdienst; Gesundheitswesen; Child; Kind; Kinder; Teaching improvement; Unterrichtsentwicklung; Hours of work; Arbeitszeit; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Elternverhalten; Survey; Umfrage; Befragung; Cultural comparison; Kulturvergleich; Cost; Kosten; Brasilien; Argentinien; Dominikanische Republik |
Abstract | Lack of access to services and support is an important issue for people with autism, but in low- and middle-income countries there is a lack of data on this problem. The aims of this study were to describe the challenges and priorities, identify barriers to care, and map stigma among families of individuals with autism in Latin America. This survey was undertaken by the "Red Espectro Autista Latinoamerica" network, a coalition of researchers/clinicians from six Latin American countries; it comprised 2942 caregivers of children with autism from Brazil, Argentina, Chile, Uruguay, Venezuela, and the Dominican-Republic, who completed the Spanish/Portuguese version of the Caregiver Needs Survey. The survey showed that the main priorities were greater community awareness and improvements in education. The main barriers to care were waiting lists (50.2%), treatment costs (35.2%), and lack of specialized services (26.1%). Stigma experienced by families was frequent: one-third reported feeling discriminated against and helpless for having a child with autism, 48.8% reported some type of financial problem, 47.4% had to reduce work hours, and 35.5% had to stop working because of their child's autism. This survey describes the main needs/challenges faced by individuals with autism in Latin America, helping to build data-driven strategies at a national/regional level. (As Provided). |
Anmerkungen | SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://sagepub.com |
Erfasst von | ERIC (Education Resources Information Center), Washington, DC |
Update | 2024/1/01 |