Literaturnachweis - Detailanzeige
Autor/in | Huyard, Caroline |
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Titel | Decision-Making after Prenatal Diagnosis of a Syndrome Predisposing to Intellectual Disability: What Prospective Parents Need to Know and the Importance of Non-Medical Information |
Quelle | In: Journal of Intellectual & Developmental Disability, 37 (2012) 4, S.315-323 (9 Seiten)Infoseite zur Zeitschrift
PDF als Volltext |
Sprache | englisch |
Dokumenttyp | gedruckt; online; Zeitschriftenaufsatz |
ISSN | 1366-8250 |
DOI | 10.3109/13668250.2012.726350 |
Schlagwörter | Decision Making; Clinical Diagnosis; Disability Identification; Pregnancy; Congenital Impairments; Genetic Disorders; Down Syndrome; Mental Retardation; Parents; Information Needs; Social Environment; Semi Structured Interviews; Foreign Countries; Belgium; France; Germany |
Abstract | Background: Recently researchers have suggested that non-medical information may impact the decision to continue or terminate a pregnancy after a prenatal diagnosis. This study is an investigation of what type of information prospective parents need for this decision-making in the case of a condition predisposing to intellectual disability. Method: Semistructured interviews were conducted in France, Belgium, and Germany with 33 parents whose children have a syndrome that predisposes to intellectual disability. Results: The essential information related to three dimensions: (1) the foetus as a future child and an individual person; (2) the couple as future parents; and (3) the social environment of the future child and his or her parents, and especially the ability of the social environment to provide support. Conclusions: The findings introduce a new perspective on these prospective parents' essential needs, highlighting that these needs are not limited to medical information but encompass non-medical information and institutional patterns. (Contains 4 tables and 1 note.) (As Provided). |
Anmerkungen | Informa Healthcare. Telephone House, 69-77 Paul Street, London, EC2A 4LQ, UK. Tel: 800-354-1420; e-mail: healthcare.enquiries@informa.com; Web site: http://informahealthcare.com/action/showJournals |
Erfasst von | ERIC (Education Resources Information Center), Washington, DC |
Update | 2017/4/10 |