The Views of People Who Care for Adults with Down's Syndrome and Dementia: A Service Evaluation

Autor/inn/en	Furniss, Kate Atkins; Loverseed, Annie; Lippold, Tessa; Dodd, Karen
Titel	The Views of People Who Care for Adults with Down's Syndrome and Dementia: A Service Evaluation
Quelle	In: British Journal of Learning Disabilities, 40 (2012) 4, S.318-327 (10 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1354-4187
DOI	10.1111/j.1468-3156.2011.00714.x
Schlagwörter	Caring; Dementia; Semi Structured Interviews; Caregivers; Caregiver Attitudes; Attitude Measures; Down Syndrome; Screening Tests; Training; Family (Sociological Unit); Social Services; Phenomenology; Coping; Social Support Groups; Aging (Individuals); Foreign Countries; Residential Programs; Family Involvement; Knowledge Level; Emotional Response; United Kingdom + Suchen Sie Ihr Suchwort? Care; Pflege; Sorge; Betreuung; Demenz; Caregiver; Carer; Betreuungsperson; Pfleger; 'Downs Syndrome; Down''s Syndrome'; Down-Syndrom; Screening-Verfahren; Ausbildung; Familie; Social service; Soziale Dienstleistung; Soziale Dienste; Phenomenological psychology; Phänomenologie; Psychologie; Bewältigung; Social support; Soziale Unterstützung; Aging; Altern; Ausland; Sozialer Wohnungsbau; Wissensbasis; Emotionales Verhalten; Großbritannien
Abstract	It is well established that people with Down's syndrome are more likely to develop dementia than other people and that onset of dementia is likely to occur earlier at an earlier age. The article reports on a specialist service for people with Down's syndrome and dementia. The service has offered dementia screening and assessment to people with Down's syndrome for over 10 years and has also developed to offer support and training for carers. Semi-structured interviews were conducted with family carers, relatives and staff about the impact on them of caring for someone with Down's syndrome and how the dementia service supports them in this role. The resulting data were analysed using interpretative phenomenological analysis. The responses provide rich insights into the areas of "knowledge and information", "coping and support" and "concerns about the future". Interviewees also identified services they wanted for the future. As a result of this evaluation, a number of changes have been proposed and begun to be implemented within the service. The results have important implications for other health, social care and voluntary organisations. (Contains 4 tables.) (As Provided).
Anmerkungen	Wiley-Blackwell. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8598; Fax: 781-388-8232; e-mail: cs-journals@wiley.com; Web site: http://www.wiley.com/WileyCDA/
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10