Sailing the Stormy Seas: The Illness Experience of Persons with Parkinson's Disease

Autor/inn/en	Stanley-Hermanns, Melinda; Engebretson, Joan
Titel	Sailing the Stormy Seas: The Illness Experience of Persons with Parkinson's Disease
Quelle	In: Qualitative Report, 15 (2010) 2, S.340-369 (30 Seiten)Infoseite zur Zeitschrift PDF als Volltext kostenfreie Datei Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1052-0147
Schlagwörter	Social Support Groups; Figurative Language; Diseases; Chronic Illness; Neurological Impairments; Ethnography; Symptoms (Individual Disorders); Coping; Daily Living Skills; Experience; Emotional Response; Disabilities; Social Attitudes; Social Isolation; Identification (Psychology); Self Concept; Aging (Individuals) + Suchen Sie Ihr Suchwort? Social support; Soziale Unterstützung; Disease; Krankheit; Chronic disease; Chronische Krankheit; Neurodegenerative Erkrankung; Ethnografie; Psychiatrische Symptomatik; Bewältigung; Alltagsfertigkeit; Erfahrung; Emotionales Verhalten; Handicap; Behinderung; Social attidude; Soziale Einstellung; Soziale Isolation; Selbstkonzept; Aging; Altern
Abstract	Parkinson's disease is a chronic, progressive disorder with no known cause or promising cure. While substantial information is known about the pathophysiology, little is known about the illness experience of living with the disease. A qualitative study using an ethnographic approach was conducted to provide a rich understanding of the illness experience. The illness experience was apprehended through field work in two support groups and the personal accounts of 14 participants with Parkinson's disease. The metaphor, "Sailing the Sea in The Eye of the Storm," is the overarching theme and was chosen to conceptualize the voyage of persons living with Parkinson's disease. Two prevailing sub-themes were Daily Negotiations in the Midst of Uncertainty and Reconstruction of the Self. (Contains 2 tables and 2 figures.) (As Provided).
Anmerkungen	Nova Southeastern University. 3301 College Avenue, Fort Lauderdale, FL 33317. Tel: 954-262-5389; Fax: 954-262-3970; Web site: http://www.nova.edu/ssss/QR
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10