Objective and Subjective Quality of Life in Adults with Autism Spectrum Disorders in Southern Spain

Autor/inn/en	Saldana, David; Alvarez, Rosa M.; Lobaton, Silvia; Lopez, Ana M.; Moreno, Macarena; Rojano, Miguel
Titel	Objective and Subjective Quality of Life in Adults with Autism Spectrum Disorders in Southern Spain
Quelle	In: Autism: The International Journal of Research and Practice, 13 (2009) 3, S.303-316 (14 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361309103792
Schlagwörter	Autism; Communication Problems; Quality of Life; Questionnaires; Foreign Countries; Social Networks; Measures (Individuals); Adults; Employment; Health; Adjustment (to Environment); Severe Disabilities; Services; Community Support; Spain + Suchen Sie Ihr Suchwort? Autismus; Kommunikationsbarriere; Lebensqualität; Fragebogen; Ausland; Social network; Soziales Netzwerk; Messdaten; Dienstverhältnis; Gesundheit; Severe disability; Schwerbehinderung; Dienstleistung; Spanien
Abstract	Subjective and objective measures of quality of life (QoL) were obtained for adults with autism spectrum disorders (ASDs) living in Andalusia (Spain). Seventy-four families responded to questionnaires about objective QoL indicators such as employment, health, adaptive behaviour and social network, and were asked to act as proxies for subjective QoL measures. Outcome on objective QoL was extremely poor. Social networks were most frequently composed of family members. Community-oriented resources were absent in most cases. For two-thirds of the families, the ability to act as proxies for subjective QoL was seriously limited by the participants' poor social and communicative abilities. The results are indicative of the need for additional support to families of adults with ASD and increased community-based resources. Further conceptualization of indicators and measurement of subjective QoL in individuals with severe disabilities and ASD is also needed in order to include their own perspective in the evaluation of service provision. (Contains 4 tables.) (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10