"Autism Voices": A Novel Method to Access First-Person Perspective of Autistic Youth

Autor/inn/en	Courchesne, Valérie; Tesfaye, Rackeb; Mirenda, Pat; Nicholas, David; Mitchell, Wendy; Singh, Ilina; Zwaigenbaum, Lonnie; Elsabbagh, Mayada
Titel	"Autism Voices": A Novel Method to Access First-Person Perspective of Autistic Youth
Quelle	In: Autism: The International Journal of Research and Practice, 26 (2022) 5, S.1123-1136 (14 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Courchesne, Valérie) ORCID (Tesfaye, Rackeb) ORCID (Mirenda, Pat)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/13623613211042128
Schlagwörter	Autism Spectrum Disorders; Interviews; Nonverbal Communication; Communication Strategies; Experience; Foreign Countries; Adolescents; Verbal Ability; Communication Skills; Parents; Visual Aids; Parent Participation; Canada + Suchen Sie Ihr Suchwort? Autism; Autismus; Interviewing; Interviewtechnik; Non-verbal communication; Nonverbale Kommunikation; Kommunikationsstrategie; Erfahrung; Ausland; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Mündliche Leistung; Kommunikationsstil; Eltern; Anschauungsmaterial; Elternmitwirkung; Kanada
Abstract	Opportunities to communicate first-person perspectives are essential for self-determination. However, many autistic youth are excluded from sharing their perspectives, specifically those who are minimally verbal or with lower intellectual functioning. Current challenges to capturing their voices include a lack of appropriate inclusive methodologies. Propose an inclusive strength-oriented method to capture first-person perspectives of autistic adolescents. Our protocol ("Autism Voices") includes a pre-interview survey and semi-structured interview using universal design strategies. It was piloted with 33 participants who were representative of diverse language and cognitive abilities. A coding scheme was developed to identify communicative acts used by participants and mitigation strategies used by interviewers to enhance communication. Interviewer strategies that enhanced communication included question formulation, use of pictures, offering various output modalities, and flexible implementation of the protocol. Non-verbal and alternative communication responses (e.g. choosing to not respond) were informative to youth's lived experience, especially for minimally verbal participants. Overall, our results highlight that communication goes beyond verbally answering questions and that participants' unconventional communication conveyed rich information. Autism Voices provides a promising method to promote the inclusion of autistic youth in research. (As Provided).
Anmerkungen	SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub.com
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01