Exploring Patterns of Advocacy and Well-Being of Parents of Children with Intellectual and Developmental Disabilities

Autor/inn/en	Rios, Kristina; Aleman-Tovar, Janeth; Burke, Meghan
Titel	Exploring Patterns of Advocacy and Well-Being of Parents of Children with Intellectual and Developmental Disabilities
Quelle	In: Intellectual and Developmental Disabilities, 59 (2021) 6, S.459-471 (13 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1934-9491
Schlagwörter	Advocacy; Well Being; Parents; Intellectual Disability; Developmental Disabilities; Anxiety; Family Relationship; Marriage; Quality of Life + Suchen Sie Ihr Suchwort? Sozialanwaltschaft; Well-being; Wellness; Wohlbefinden; Eltern; Intellect; Disability; Disabilities; Verstand; Behinderung; Entwicklungsstörung; Angst; Ehe; Lebensqualität
Abstract	Advocacy is often an expectation for parents of children with intellectual and developmental disabilities (IDD). However, little is known about how advocacy may impact parent well-being, including stress, family dynamics, and marital relationships. By exploring the effects of advocacy on well-being, interventions can be implemented to support both the advocacy and well-being of parents of children with IDD. To this end, the purpose of the study was to explore the pattern between positive and negative advocacy experiences of parents of children with IDD and the well-being of parents, families, and marriages. Semi-structured interviews were conducted with 38 parents of children with IDD. Regardless of the nature (i.e., positive, or negative) of the advocacy experience, participants reported that advocacy increased their stress. When the advocacy experience was positive, some participants reported improved family quality of life. Also, regardless of the nature of the advocacy experience, some participants reported feeling frustration within their marital relationships. Implications for future research and practice are discussed. (As Provided).
Anmerkungen	American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: https://meridian.allenpress.com/aaidd
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01