Perceptions Regarding Communicative Participation in Individuals Receiving Botulinum Toxin Injections for Laryngeal Dystonia

Autor/inn/en	Yorkston, Kathryn; Baylor, Carolyn R.; Eadie, Tanya; Kapsner-Smith, Mara
Titel	Perceptions Regarding Communicative Participation in Individuals Receiving Botulinum Toxin Injections for Laryngeal Dystonia
Quelle	In: International Journal of Language & Communication Disorders, 56 (2021) 6, S.1296-1315 (20 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Yorkston, Kathryn)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1368-2822
DOI	10.1111/1460-6984.12668
Schlagwörter	Voice Disorders; Neurological Impairments; Drug Therapy; Intervention; Interpersonal Communication; Coping; Attitudes; Program Effectiveness + Suchen Sie Ihr Suchwort? Stimmstörung; Neurodegenerative Erkrankung; Interpersonale Kommunikation; Bewältigung; Attitude; Einstellung; Verhalten
Abstract	Background: Laryngeal dystonia (LD), or spasmodic dysphonia (SD), is a neurological disorder characterized by focal dystonia or involuntary spasms of the laryngeal muscles and associated voice symptoms. It is typically treated with injection of botulinum toxin (BoNT) that weakens the affected muscles. Aims: The primary purpose of this qualitative study was to explore participants' experience of living with LD and BoNT treatment. The secondary purpose was to examine those experiences as a function of participants' scores on the Communicative Participation Item Bank (CPIB). Results will enhance our understanding of restrictions in communicative participation, assist in planning intervention targeting these restrictions and aid in clinical interpretation of CPIB scores. Methods & Procedures: Semi-structured interviews using a phenomenological tradition and focusing on BoNT treatment and communicative participation were conducted with 26 people with LD who are on established BoNT treatment regimens. Interviews were recorded, transcribed, coded and analysed inductively. Participants were categorized by CPIB scores into groups ranging from none to extensive participation restrictions. Both self- and expert ratings of voice were obtained. Outcomes & Results: Participants with different levels of CPIB scores had different experiences related to communicative participation in the context of BoNT treatment. These differences were organized into the following topics: BoNT and voice; attitudes toward participation; coping strategies; and advice. For all participants except those in the least restricted and most restricted groups, expert ratings of voice did not relate to CPIB scores. Conclusions & Implications: Although most participants report improved voice with BoNT treatment, many participants experienced lingering restrictions in communicative participation, some to a severe extent. Participants reported coping with these restrictions in many ways; some of these strategies were more successful than others. Those with restricted participation recommended more support for daily life and the emotional toll of LD, as well as support for family members. This support might be offered by speech-language pathologists. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01