'It's Not That They Don't Want to Access the Support . . . It's the Impact of the Autism': The Experience of Eating Disorder Services from the Perspective of Autistic Women, Parents and Healthcare Professionals

Autor/inn/en	Babb, Charli; Brede, Janina; Jones, Catherine R. G.; Elliott, Mair; Zanker, Cathy; Tchanturia, Kate; Serpell, Lucy; Mandy, Will; Fox, John R. E.
Titel	'It's Not That They Don't Want to Access the Support . . . It's the Impact of the Autism': The Experience of Eating Disorder Services from the Perspective of Autistic Women, Parents and Healthcare Professionals
Quelle	In: Autism: The International Journal of Research and Practice, 25 (2021) 5, S.1409-1421 (13 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Babb, Charli) ORCID (Jones, Catherine R. G.) ORCID (Mandy, Will)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361321991257
Schlagwörter	Autism; Pervasive Developmental Disorders; Females; Eating Disorders; Intervention; Parents; Allied Health Personnel; Misconceptions; Access to Health Care; Barriers; Knowledge Level; Foreign Countries; Symptoms (Individual Disorders); United Kingdom + Suchen Sie Ihr Suchwort? Autismus; Weibliches Geschlecht; Appetite disorder; Essstörung; Eltern; Missverständnis; Wissensbasis; Ausland; Psychiatrische Symptomatik; Großbritannien
Abstract	This study explores autistic women's experiences of eating disorder services. Estimates suggest that 20%-30% of women in treatment for anorexia nervosa display diagnostic features characteristic of autism. Research suggests that autistic individuals' needs are not being met by standard anorexia nervosa treatments. In the current study, in-depth interviews were conducted with 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 eating disorder healthcare professionals. Using thematic analysis, three overarching themes were identified: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that there were diverse barriers facing autistic women when in treatment for anorexia nervosa, and these were accentuated by a lack of autism understanding within eating disorder services. Future research should focus on developing interventions that are tailored to the specific needs of autistic individuals with anorexia nervosa. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01