Autistic Parents' Views and Experiences of Talking about Autism with Their Autistic Children

Autor/inn/en	Crane, Laura; Lui, Lok Man; Davies, Jade; Pellicano, Elizabeth
Titel	Autistic Parents' Views and Experiences of Talking about Autism with Their Autistic Children
Quelle	In: Autism: The International Journal of Research and Practice, 25 (2021) 4, S.1161-1167 (7 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Crane, Laura) ORCID (Davies, Jade) ORCID (Pellicano, Elizabeth)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361320981317
Schlagwörter	Autism; Pervasive Developmental Disorders; Parent Attitudes; Experience; Parent Child Relationship; Foreign Countries; United Kingdom + Suchen Sie Ihr Suchwort? Autismus; Elternverhalten; Erfahrung; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Ausland; Großbritannien
Abstract	Little is known about how parents talk about autism with their autistic children, particularly among families in which both a parent and child are autistic. Using an online survey, we gathered quantitative and qualitative data from 34 autistic parents (most of whom had told their children about their diagnosis) to address this knowledge gap. There was considerable overlap between the views and experiences of the autistic parents in this study and the largely non-autistic parent samples in previous research. Specifically, parents emphasised the importance of being open and honest about the diagnosis, disclosing the diagnosis as early as possible, individualising discussions to children's needs and framing the diagnosis positively. There were, however, areas in which the views and experiences of the current sample differed from previous research on non-autistic samples. First, our sample of autistic parents outlined the benefits of their own experiential expertise, which they felt resulted in heightened understanding and empathy with their children. Second, our sample tended not to express concerns about disclosure potentially having a negative impact. Finally, our participants did not express a want or need for professional support with disclosure. Instead, they reported feeling well equipped to support their children using their own knowledge and lived experience. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01