Altruistic Reasoning in Adolescent-Parent Dyads Considering Participation in a Hypothetical Sexual Health Clinical Trial for Adolescents

Autor/inn/en	Chávez, Noé Rubén; Williams, Camille Y.; Ipp, Lisa S.; Catallozzi, Marina; Rosenthal, Susan L.; Breitkopf, Carmen Radecki
Titel	Altruistic Reasoning in Adolescent-Parent Dyads Considering Participation in a Hypothetical Sexual Health Clinical Trial for Adolescents
Quelle	In: Research Ethics, 12 (2016) 2, S.68-79 (12 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1747-0161
DOI	10.1177/1747016115587963
Schlagwörter	Altruism; Sexuality; Parent Child Relationship; Adolescents; Health Behavior; Mothers; Parent Attitudes; Risk; Informed Consent; Research; Decision Making; Medical Research; Safety; Drug Use; Sexually Transmitted Diseases; Biochemistry; Prevention; Acquired Immunodeficiency Syndrome (AIDS); New York (New York) + Suchen Sie Ihr Suchwort? Altruistic behavior; Altruismus; Sexualität; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Health behaviour; Gesundheitsverhalten; Mother; Mutter; Elternverhalten; Risiko; Forschung; Decision-making; Entscheidungsfindung; Sicherheit; Drug consumption; Substance abuse; Drogenkonsum; Sexual transmitted disease; Geschlechtskrankheit; Biochemie; Prävention; Vorbeugung
Abstract	Altruism is a well-established reason underlying research participation. Less is known about altruism in adolescent-parent decision-making about clinical trials enrolling healthy adolescents. This qualitative investigation focused on identifying spontaneous statements of altruism within adolescent-parent (dyadic) discussions of participation in a hypothetical phase I clinical trial related to adolescent sexual health. Content analysis revealed several response patterns to each other's altruistic reasoning. Across 70 adolescent-parent dyads in which adolescents were 14 to 17 years of age and 91% of their parents were mothers, a majority (61%) of dyadic discussions included a statement reflecting altruism. Parents responded to adolescents' statements of altruism more frequently than adolescents responded to parents' statements. Responses included: expresses concern, reiterates altruistic reasoning, agrees with altruistic reasoning, and adds to/expands altruistic reasoning. Since an altruistic perspective was often balanced with concerns about risk or study procedures, researchers cannot assume that altruism will directly lead to study participation. Optimizing the informed consent process for early phase clinical trials involving healthy adolescents may include supporting parents to have conversations with their adolescents which will enhance their capacity to consider all aspects of trial participation. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01