Could Ethical Tensions in Oral Healthcare Management Revealed by Adults with Intellectual Disabilities and Caregivers Explain Unmet Oral Health Needs? Participatory Research with Focus Groups

Autor/inn/en	Blaizot, Alessandra; Hamel, Olivier; Folliguet, Marysette; Herve, Christian; Meningaud, Jean-Paul; Trentesaux, Thomas
Titel	Could Ethical Tensions in Oral Healthcare Management Revealed by Adults with Intellectual Disabilities and Caregivers Explain Unmet Oral Health Needs? Participatory Research with Focus Groups
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 30 (2017) 1, S.172-187 (16 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12231
Schlagwörter	Foreign Countries; Adults; Patients; Intellectual Disability; Caregivers; Physician Patient Relationship; Dentistry; Ethics; Conflict; Focus Groups; Content Analysis; Expectation; Competence; Decision Making; Social Environment; Health Needs; Participatory Research; Qualitative Research; Dental Health; France + Suchen Sie Ihr Suchwort? Ausland; Patient; Intellect; Disability; Disabilities; Verstand; Behinderung; Caregiver; Carer; Betreuungsperson; Pfleger; Arzt-Patient-Beziehung; Zahnmedizin; Ethik; Konflikt; Inhaltsanalyse; Expectancy; Erwartung; Kompetenz; Decision-making; Entscheidungsfindung; Soziales Umfeld; Forschungstätigkeit; Qualitative Forschung; Zahnärztliche Versorgung; Frankreich
Abstract	Background: Cognitively impaired patients often present poor oral health status that may be explained by ethical tensions in oral healthcare management. This participatory study explored such tensions among adults with intellectual disabilities and with caregivers. The second objective was to specify, with caregivers, the points that should be developed in a future study among dentists. Materials and Methods: Three focus groups involving adults with intellectual disabilities, family caregivers and professional caregivers were organized in France in 2013. Results: The thematic content analysis identified discrepancies between experiences and expectations, which were particularly marked for the dentist's competence and attitudes, the dentist's role in decisions, the dental care management and the French socio-political context. Conclusions: These discrepancies could partly explain multiple attempts to find the "right" dentist or the fact that care was abandoned, and could at least contribute to oral health needs being unmet. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01