Autism Comes to the Hospital: The Experiences of Patients with Autism Spectrum Disorder, Their Parents and Health-Care Providers at Two Canadian Paediatric Hospitals

Autor/inn/en	Muskat, Barbara; Burnham Riosa, Priscilla; Nicholas, David B.; Roberts, Wendy; Stoddart, Kevin P.; Zwaigenbaum, Lonnie
Titel	Autism Comes to the Hospital: The Experiences of Patients with Autism Spectrum Disorder, Their Parents and Health-Care Providers at Two Canadian Paediatric Hospitals
Quelle	In: Autism: The International Journal of Research and Practice, 19 (2015) 4, S.482-490 (9 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361314531341
Schlagwörter	Autism; Hospitals; Pervasive Developmental Disorders; Pediatrics; Children; Youth; Experience; Allied Health Personnel; Qualitative Research; Barriers; Access to Health Care; Interpersonal Communication; Perceptual Impairments; Adolescents; Foreign Countries; Semi Structured Interviews; Parent Attitudes; Pain; Communication Problems; Canada + Suchen Sie Ihr Suchwort? Autismus; Krankengymnast; Krankenhaus; Klinische Sozialpädiatrie; Child; Kind; Kinder; Jugend; Jugendlicher; Jugendalter; Erfahrung; Qualitative Forschung; Interpersonale Kommunikation; Perceptual handicaps; Wahrnehmungsstörung; Adolescent; Adolescence; Adoleszenz; Ausland; Elternverhalten; Schmerz; Kommunikationsbarriere; Kanada
Abstract	Youth with autism spectrum disorder are a vulnerable, often poorly understood patient group, who may experience periodic and chronic health challenges, in addition to their primary developmental social and communication problems. Developmental and behavioural challenges can complicate management of acute health-care needs. To date, there is an absence of empirical research exploring the hospital experiences of children and youth with autism spectrum disorder, their families and their health-care providers. Therefore, the purpose of this study was to understand these experiences in order to inform hospital-based care. A total of 42 participants were interviewed (youth with autism spectrum disorder, their parents and health-care providers) at one of two Canadian paediatric hospitals, representing 20 distinct cases of patients with autism spectrum disorder. Results from the qualitative analyses indicated that patients with autism spectrum disorder faced several challenges in the context of health-care delivery in the hospital setting, as did their families and health-care provider team. Problems identified included communication and sensory challenges, and the degree of flexibility of health-care providers and the hospital organization. Supportive health-care providers were those who acknowledged parents as experts, inquired about the requirements of patients with autism spectrum disorder and implemented strategies that accommodated the unique clinical presentation of the individual patient. These recommendations have wide-reaching utility for hospital and health-care practices involving this patient group. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01