Literaturnachweis - Detailanzeige
| Autor/in | Paine, Rachael Laura |
|---|---|
| Titel | Caring about the User's State of Mind: Exploring the Online Health Information Seeking Behaviors of Rare Disease Caretakers |
| Quelle | (2022), (204 Seiten)
PDF als Volltext Ph.D. Dissertation, North Carolina State University |
| Sprache | englisch |
| Dokumenttyp | gedruckt; online; Monographie |
| ISBN | 979-8-3719-3977-7 |
| Schlagwörter | Hochschulschrift; Dissertation; Caregivers; Diseases; Disease Incidence; Online Searching; Information Seeking; Users (Information); Health Materials; Information Needs; Experience; Psychological Patterns; Stress Management; Community Resources; Expertise; Web Sites; Behavior |
| Abstract | Human search for information is a constant and instinctual act Search is a problem-solving. goal-oriented behavior. With the rise of the computer, searching has quickly manifested itself into a digital activity. Searching the internet for information is a ubiquitous act. In some situations, there are information seeking circumstances where a user's need for information is of extreme importance, such as seeking urgent medical information. This research concerns the experience of rare disease caretakers who search online for health information. More specifically, this research investigated the user's emotional state while searching online to develop frameworks for designers and IT developers. Findings suggest that searching for health information for rare disease caretakers is an emotionally charged activity. Rare disease caretakers often rely on community resources to aid in the stress of their situation. Over time through continued researching, users became self-made rare disease experts. After a pilot focus group study, data were collected from three interviews and one observation. Data were systematically analyzed using coding methods of grounded theory. The categories that emerged were researching, engaging with community, becoming the expert. and state of mind. Connections were made to the guiding theories of the study: Leventhal's Common-sense Model of Illness Representations (Leventhal, Phillips, & Burns, 2016) and Wilson's Model of Information Behavior (Wilson, 1999). This dissertation contributes to the field of user experience by offering a proposed set of guidelines for designers to follow when designing health information websites. Additionally, it reveals the necessity of designing for specialized user groups who have often been underserved. Information gained from this study suggests the need for future research in information-seeking behavior, user experience,and online community participation. [The dissertation citations contained here are published with the permission of ProQuest LLC. Further reproduction is prohibited without permission. Copies of dissertations may be obtained by Telephone (800) 1-800-521-0600. Web page: http://www.proquest.com/en-US/products/dissertations/individuals.shtml.] (As Provided). |
| Anmerkungen | ProQuest LLC. 789 East Eisenhower Parkway, P.O. Box 1346, Ann Arbor, MI 48106. Tel: 800-521-0600; Web site: http://www.proquest.com/en-US/products/dissertations/individuals.shtml |
| Erfasst von | ERIC (Education Resources Information Center), Washington, DC |
| Update | 2024/1/01 |
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