Service Receipt of Adults with Rare Genetic Syndromes Who Engage in Challenging Behaviour

Autor/inn/en	Awan, N.; Oliver, C.; Wilde, L.; Eden, K.; Waite, J.
Titel	Service Receipt of Adults with Rare Genetic Syndromes Who Engage in Challenging Behaviour
Quelle	In: Journal of Intellectual & Developmental Disability, 43 (2018) 3, S.308-316 (9 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Waite, J.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1469-9532
DOI	10.3109/13668250.2017.1350837
Schlagwörter	Adults; Genetic Disorders; Behavior Problems; Autism; Pervasive Developmental Disorders; Conceptual Tempo; Hyperactivity; Parent Attitudes; Access to Health Care; Health Services; Scores; Correlation; Individual Characteristics; Foreign Countries; Intellectual Disability; Measures (Individuals); United Kingdom (England) + Suchen Sie Ihr Suchwort? Autismus; Hyperaktivität; Elternverhalten; Health service; Gesundheitsdienst; Gesundheitswesen; Korrelation; Personality characteristic; Personality traits; Persönlichkeitsmerkmal; Ausland; Intellect; Disability; Disabilities; Verstand; Behinderung; Messdaten
Abstract	Background: There is limited research documenting the health and/or psychological services accessed by adults with rare genetic syndromes who engage in challenging behaviour. The study documented service receipt and associations with person characteristics. Method: Thirty-two parents of adults with rare genetic syndromes completed an adapted version of the Client Service Receipt Inventory. Access to services for general health and challenging behaviour in the last six months were documented. Person characteristics measured were: adaptive behaviour, autism spectrum disorder characteristics, impulsivity and overactivity. Results: Over half of adults who engaged in challenging behaviour did not receive professional input for behaviours. No association was found between the degree of challenging behaviour and service receipt for challenging behaviour. Total activity score (impulsivity and overactivity) was positively associated, and adaptive ability negatively associated, with accessing professionals. Conclusions: Service receipt is not appropriately linked to needs. Further research should examine factors that affect service access including individual characteristics and service experience. (As Provided).
Anmerkungen	Informa Healthcare. Telephone House, 69-77 Paul Street, London,EC2A 4LQ,UK. Tel: 800-354-1420; e-mail: healthcare.enquiries@informa.com; Web site: http://informahealthcare.com/action/showJournals
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01