Brief Report: The Experiences of Families of Children with an Autism Spectrum Disorder When Seeking Patient-and Family-Centered Care

Autor/inn/en	Kouo, Jennifer L.; Kouo, Theodore S.; Gallogly, Jillian
Titel	Brief Report: The Experiences of Families of Children with an Autism Spectrum Disorder When Seeking Patient-and Family-Centered Care
Quelle	In: Journal of Autism and Developmental Disorders, 52 (2022) 9, S.4172-4180 (9 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Kouo, Jennifer L.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0162-3257
DOI	10.1007/s10803-021-05272-6
Schlagwörter	Autism; Pervasive Developmental Disorders; Cooperation; Health Personnel; Patients; Family (Sociological Unit); Teamwork; Participative Decision Making; Family Involvement; Barriers; Delivery Systems; Access to Health Care; Health Services; Interaction; Medical Services + Suchen Sie Ihr Suchwort? Autismus; Co-operation; Kooperation; Medizinisches Personal; Patient; Familie; Auslieferung; Health service; Gesundheitsdienst; Gesundheitswesen; Interaktion; Arzt
Abstract	Patient-and family-centered care (PFCC) is a partnership among healthcare professionals, patients, and families that is grounded in mutual respect and is an approach that impacts delivery of care, decision-making, and information sharing. PFCC should be implemented for all, including individuals with Autism Spectrum Disorders (ASD), who experience adverse medical encounters despite increased prevalence and healthcare utilization. Insights into the experiences of families during medical experiences can inform clinical practice by increasing healthcare professionals' understanding of the population. Using a mixed-methods approach, the perspectives of 40 families were analyzed. The themes include barriers and opportunities to improve upon the delivery of PFCC, which help to advance healthcare interactions and inform solution-based initiatives to facilitate medical visits that may benefit all patients. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01