A Balancing Act: An Interpretive Description of Healthcare Providers' and Families' Perspective on the Surgical Experiences of Children with Autism Spectrum Disorder

Autor/inn/en	Snow, Stephanie L.; Smith, Isabel M.; Latimer, Margot; Stirling Cameron, Emma; Fox, Jennifer; Chorney, Jill
Titel	A Balancing Act: An Interpretive Description of Healthcare Providers' and Families' Perspective on the Surgical Experiences of Children with Autism Spectrum Disorder
Quelle	In: Autism: The International Journal of Research and Practice, 26 (2022) 4, S.839-848 (10 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Smith, Isabel M.) ORCID (Stirling Cameron, Emma)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/13623613211034057
Schlagwörter	Autism; Pervasive Developmental Disorders; Surgery; Children; Health Personnel; Social Support Groups; Barriers; Stress Management; Anxiety; Interpersonal Relationship; Empathy; Hospitals; Adolescents; Foreign Countries; Canada + Suchen Sie Ihr Suchwort? Autismus; Chirurgie; Child; Kind; Kinder; Medizinisches Personal; Social support; Soziale Unterstützung; Stressmanagement; Stressbewältigung; Angst; Interpersonal relation; Interpersonal relations; Interpersonelle Beziehung; Zwischenmenschliche Beziehung; Empathie; Krankengymnast; Krankenhaus; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Ausland; Kanada
Abstract	Children with an autism spectrum disorder (autism) are vulnerable to negative experiences within the surgical setting. This qualitative study used Interpretive Description. Individual interviews were conducted with 8 parents of children with autism who had recently undergone surgery, and 15 healthcare providers (HCPs) with experience caring for children with autism. Participants were asked open-ended questions on the approaches used to support children with autism around the time of surgery and their effectiveness, how the surgical experience could be improved, and the barriers and facilitators to potential improvements. Results yielded three main themes within an overarching metaphor of a balancing act. The first theme, finding your footing through an uncertain journey, described individual factors (e.g. anticipatory anxiety) that set the foundation for surgery-related experiences. The second theme, relationships can help to keep everyone steady, highlighted how interpersonal dynamics (e.g. collaboration and empathy) influence the experience. Finally, the systems shape the experience theme captured the impact of systemic factors (e.g. the hospital environment) on the balancing act. These findings enriched our understanding of how individual, interpersonal, and systemic factors influence the surgical experiences of children with autism, families, and HCPs. Insights gained from this study can be used to inform future interventions. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01