'I Just Rolled up My Sleeves': Mothers' Perspectives on Raising Girls on the Autism Spectrum

Autor/inn/en	Fowler, Karen; O'Connor, Cliodhna
Titel	'I Just Rolled up My Sleeves': Mothers' Perspectives on Raising Girls on the Autism Spectrum
Quelle	In: Autism: The International Journal of Research and Practice, 25 (2021) 1, S.275-287 (13 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Fowler, Karen) ORCID (O'Connor, Cliodhna)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361320956876
Schlagwörter	Autism; Pervasive Developmental Disorders; Mothers; Daughters; Children; Adolescents; Foreign Countries; Clinical Diagnosis; Social Bias; Attitudes toward Disabilities; Parent Child Relationship; Stress Variables; Resilience (Psychology); Psychological Patterns; Social Support Groups; Child Rearing; Parent Role; Ireland + Suchen Sie Ihr Suchwort? Autismus; Mother; Mutter; Daughter; Tochter; Child; Kind; Kinder; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Ausland; Parents-child relationship; Parent-child-relation; Parent-child relationship; Eltern-Kind-Beziehung; Social support; Soziale Unterstützung; Kindererziehung; Parental role; Elternrolle; Irland
Abstract	Little previous research has elucidated the everyday experiences of autistic girls or their families. This study used qualitative in-depth interviews to explore mothers' experiences of the diagnosis, presentation and impact of caring for a daughter with autism. Nineteen women with autistic daughters (aged between 7 and 18) participated in the research, which took place in Ireland. Thematic analysis identified six themes: What's Going On?; Road to Acceptance; Beyond the Stigma of Autism; Autism: Like a Girl; Mothers Holding It All Together; and Mothers Roll Up Their Sleeves. The analysis suggests that the path of autism in girls in Ireland is marked by diagnostic delays, social stigma, interpersonal difficulties, mental health comorbidities and parental stress. However, these challenges were offset by the resilience of mothers, buttressed by pride in their daughters and support from other women. Results will inform the development of policy and practice that is sensitive to the lived realities of autistic girls and their families. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2022/1/01