Looking Back, Looking Forward: Methodological Challenges and Future Directions in Research on Persons with Profound Intellectual and Multiple Disabilities

Autor/inn/en	Maes, Bea; Nijs, Sara; Vandesande, Sien; Van keer, Ines; Arthur-Kelly, Michael; Dind, Juliane; Goldbart, Juliet; Petitpierre, Geneviève; Van der Putten, Annette
Titel	Looking Back, Looking Forward: Methodological Challenges and Future Directions in Research on Persons with Profound Intellectual and Multiple Disabilities
Quelle	In: Journal of Applied Research in Intellectual Disabilities, 34 (2021) 1, S.250-262 (13 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Maes, Bea) ORCID (Nijs, Sara) ORCID (Vandesande, Sien) ORCID (Van keer, Ines) ORCID (Arthur-Kelly, Michael) ORCID (Dind, Juliane) ORCID (Goldbart, Juliet)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1360-2322
DOI	10.1111/jar.12803
Schlagwörter	Severe Intellectual Disability; Multiple Disabilities; Research Methodology; Barriers; Sampling; Data Collection; Data Analysis; Ethics; Models + Suchen Sie Ihr Suchwort? Multiple disability; Mehrfachbehinderung; Research method; Forschungsmethode; Data capture; Datensammlung; Auswertung; Ethik; Analogiemodell
Abstract	Background: Within the context of the Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the methodological problems and challenges they are confronted with. The aim of the current article was to give an overview of these challenges. Methods: The challenges are centred on six topics. These reflect the main components of a study's design: (a) participant demarcation, (b) participant recruitment, (c) data collection and instruments, (d) data analysis, (e) ethics/including the "voice" of persons with PIMD and (f) theoretical models. Results: Next, to describing the specific challenges, possible solutions and pathways to address them are discussed. These are illustrated by recent studies by the authors and other researchers in the field. Conclusions: The current contribution wants to stimulate further discussion and exchange of ideas, and the development of creative research techniques. (As Provided).
Anmerkungen	Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2022/1/01