Blindness and Autism: Parents' Perspectives on Diagnostic Challenges, Support Needs and Support Provision

Autor/inn/en	de Verdier, Kim; Fernell, Elisabeth; Ek, Ulla
Titel	Blindness and Autism: Parents' Perspectives on Diagnostic Challenges, Support Needs and Support Provision
Quelle	In: Journal of Autism and Developmental Disorders, 50 (2020) 6, S.1921-1930 (10 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0162-3257
DOI	10.1007/s10803-019-03944-y
Schlagwörter	Autism; Pervasive Developmental Disorders; Intellectual Disability; Blindness; Parent Attitudes; Clinical Diagnosis; Expertise; Child Development; Family Needs; Intervention + Suchen Sie Ihr Suchwort? Autismus; Intellect; Disability; Disabilities; Verstand; Behinderung; Blindheit; Elternverhalten; Expert appraisal; Kindesentwicklung
Abstract	Autism spectrum disorder (ASD), with or without intellectual disability (ID), is common in children with congenital blindness. This complex combination of disabilities often involves many challenges for the family. This study explored parents' experiences of having a child with blindness and ASD (with or without ID), their support needs and experiences of the support provided. Interviews with eight parents, representing six families, were performed. The parents emphasized that assessment and diagnostic procedures must be performed by professionals with expertise in blind children's development, and ASD. The support was often perceived as fragmented and did not correspond to the families' needs. The results suggest that national guidelines should be produced, to ensure a more coordinated and tailored support to these families. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01