Pediatric Quality of Life Inventory (PedsQL) in Fragile X Syndrome

Autor/inn/en	Fitzpatrick, Sarah E.; Schmitt, Lauren M.; Adams, Ryan; Pedapati, Ernest V.; Wink, Logan K.; Shaffer, Rebecca C.; Sage, Jessica; Weber, Jayne Dixon; Dominick, Kelli C.; Erickson, Craig A.
Titel	Pediatric Quality of Life Inventory (PedsQL) in Fragile X Syndrome
Quelle	In: Journal of Autism and Developmental Disorders, 50 (2020) 3, S.1056-1063 (8 Seiten) PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Erickson, Craig A.)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0162-3257
DOI	10.1007/s10803-019-04292-7
Schlagwörter	Genetic Disorders; Children; Quality of Life; Autism; Pervasive Developmental Disorders; Developmental Disabilities; Measures (Individuals); Parents; Gender Differences; Age Differences + Suchen Sie Ihr Suchwort? Child; Kind; Kinder; Lebensqualität; Autismus; Entwicklungsstörung; Messdaten; Eltern; Geschlechterkonflikt; Age; Difference; Age difference; Altersunterschied
Abstract	To date, health related quality of life (QoL) has not been systematically evaluated in youth with fragile X syndrome (FXS), the most common single gene cause of autism and the most common inherited form of developmental disability. We describe QoL data gathered using the Pediatric Quality of Life Inventory (PedsQL) completed online by 364 parents of youth with FXS. Parents consistently reported across all gender and age groups that their children experienced the highest QoL in Physical functioning and the lowest QoL in Cognitive functioning. Overall, older children with FXS had increase QoL ratings in the domains of School and Cognitive function. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2022/1/01