Experiences of Parents Who Support a Family Member with Intellectual Disability and Challenging Behaviour: "This Is What I Deal with Every Single Day"

Autor/inn/en	Dreyfus, Shoshana; Dowse, Leanne
Titel	Experiences of Parents Who Support a Family Member with Intellectual Disability and Challenging Behaviour: "This Is What I Deal with Every Single Day"
Quelle	In: Journal of Intellectual & Developmental Disability, 45 (2020) 1, S.12-22 (11 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Dreyfus, Shoshana) ORCID (Dowse, Leanne)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1366-8250
DOI	10.3109/13668250.2018.1510117
Schlagwörter	Family Relationship; Behavior Problems; Intellectual Disability; Parent Attitudes; Mothers; Family Programs; Foreign Countries; Children; Young Adults; Males; Help Seeking; Social Services; Caregivers; Family Needs; Australia + Suchen Sie Ihr Suchwort? Intellect; Disability; Disabilities; Verstand; Behinderung; Elternverhalten; Mother; Mutter; Family program; Familienprogramm; Ausland; Child; Kind; Kinder; Young adult; Junger Erwachsener; Male; Männliches Geschlecht; Help-seeking behavior; Help-seeking behaviour; Hilfe suchendes Verhalten; Social service; Soziale Dienstleistung; Soziale Dienste; Caregiver; Carer; Betreuungsperson; Pfleger; Australien
Abstract	Background: Research into parents' experiences of living with a family member with intellectual disability and challenging behaviour does not specifically address what parents say about themselves and their lives. This paper explores "I-statements" parents made about their day-to-day actions in life with their family member. Methods: Semi-structured interviews were conducted with 26 parents, of which 91% were mothers. "I-statements" were analysed using process analysis from systemic functional linguistics and thematic analysis. Results: "I-statements" showed that parents enacted a range of complex and sometimes extreme activities across a variety of life domains. Parents spoke about: managing relationships with services; educating themselves and others; seeking support; resisting poor service delivery; assisting others; and making both small and significant changes. Conclusion: The paper provided insights into the complex lives of these families and offered observations on the implications of the potential misalignment between the supports the data suggests are needed and those that, in reality, are available to them. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2024/1/01