Aspiration, Austerity and Ableism: To What Extent Are the 2014 SEND Reforms Supporting Young People with a Life-Limiting Impairment and Their Families To Get the Lives They Want?

Autor/in	Hoskin, Janet
Titel	Aspiration, Austerity and Ableism: To What Extent Are the 2014 SEND Reforms Supporting Young People with a Life-Limiting Impairment and Their Families To Get the Lives They Want?
Quelle	In: British Journal of Special Education, 46 (2019) 3, S.265-291 (27 Seiten)Infoseite zur Zeitschrift PDF als Volltext Verfügbarkeit
Zusatzinformation	ORCID (Hoskin, Janet)
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0952-3383
DOI	10.1111/1467-8578.12271
Schlagwörter	Educational Legislation; Special Education; Neoliberalism; Educational Change; Students with Disabilities; Genetic Disorders; Physical Disabilities; Parent Attitudes; Student Attitudes; Educational Philosophy; Family Role; Intervention; Health Services; Financial Support; Teacher Attitudes; Outcomes of Education; Foreign Countries; United Kingdom (England) + Suchen Sie Ihr Suchwort? Bildungsrecht; Schulgesetz; Special needs education; Sonderpädagogik; Sonderschulwesen; Neo-liberalism; Neoliberalismus; Bildungsreform; Student; Students; Disability; Disabilities; Schüler; Schülerin; Studentin; Behinderung; Physical handicap; Körperbehinderung; Elternverhalten; Schülerverhalten; Bildungsphilosophie; Erziehungsphilosophie; Health service; Gesundheitsdienst; Gesundheitswesen; Finanzielle Förderung; Lehrerverhalten; Lernleistung; Schulerfolg; Ausland
Abstract	In England, legislation introduced in 2014 to reform support for children and young people with special educational needs and disability (SEND) from birth to 25 years of age has been described as the biggest change in SEND for 30 years. Support now focuses on improved outcomes for young people with SEND, and aims to be more aspirational and person-centred, with the child and family 'at the heart of the process'. This could be viewed as timely for young people with Duchenne muscular dystrophy (DMD), a genetic life-limiting impairment, who, due to improved care and interventions, are now living longer. The aim of this small-scale qualitative study is to explore whether young people with DMD, their parents and schools feel that these reforms are able to support young people with life-limiting impairments to get the lives they want. Findings suggest that parents and children with DMD welcome the new person-centred philosophy, but are still forced to fight for funding and support in a system of reduced resources. Austerity and its role in the narrative of neo-liberalism is also explored. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01