Caregivers Navigating Rehabilitative Care for People with Aphasia after Stroke: A Multi-Lens Perspective

Autor/inn/en	Shafer, Jennifer S.; Shafer, Paul R.; Haley, Katarina L.
Titel	Caregivers Navigating Rehabilitative Care for People with Aphasia after Stroke: A Multi-Lens Perspective
Quelle	In: International Journal of Language & Communication Disorders, 54 (2019) 4, S.634-644 (11 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1368-2822
DOI	10.1111/1460-6984.12467
Schlagwörter	Caregiver Attitudes; Caregiver Role; Caregivers; Aphasia; Neurological Impairments; Allied Health Personnel; Rehabilitation + Suchen Sie Ihr Suchwort? Caregiver; Carer; Betreuungsperson; Pfleger; Expressive Aphasie; Aphasie; Neurodegenerative Erkrankung
Abstract	Background: Up to 40% of stroke survivors acquire aphasia and require long-term caregiver assistance after discharge from the hospital. Caregivers assume multiple roles as they help people with aphasia to access outpatient rehabilitative care in an increasingly person-centred model of care. Examining caregiver roles and how different stakeholders in the rehabilitative journey perceive these roles may be the first step in providing more tailored support to caregivers and improving outcomes for both caregivers and people with aphasia. Aims: To characterize the roles caregivers assume while navigating outpatient rehabilitative care for people with aphasia after stroke from the perspective of different stakeholders in the rehabilitative process. Methods & Procedures: Thirty-six people participated in the study, including seven caregivers, 22 stroke survivors with aphasia and seven healthcare providers. Focus groups were conducted, and an iterative thematic analysis was used to identify themes. Outcomes & Results: Results indicate that caregivers are perceived differently by varying stakeholders, and that caregivers adopt diverse roles as advocates, therapists, motivators and guardians. They assume these roles in order to fill gaps in services or otherwise to facilitate the recovery journey for the person with aphasia. Conclusions & Implications: This study provides a valuable glimpse into how varying stakeholders view the role of the caregiver during rehabilitation for people with aphasia after stroke. Providing caregivers with the training and support they need throughout the recovery journey by treating them as partners in the process may mitigate the perception of caregivers as feeling compelled to adopt multiple roles. (As Provided).
Anmerkungen	Wiley-Blackwell. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8598; Fax: 781-388-8232; e-mail: cs-journals@wiley.com; Web site: http://www.wiley.com/WileyCDA
Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01